How Music Helps Me CopeMusic is incredibly important in my life. I began playing from a young age courtesy of a lovingly heavy influence from my incredibly talented grandmother. I started formally taking piano... By Jamie Shinkewski3 min readBookmark for laterReactions 0 reactions Comments3 comments
Streaking For The Over 60s Might Be Just What's NeededAs I’ve got older, I’ve become less inhibited about certain things. I’d always believed (naively perhaps) a person got more inhibited as they aged. Not less. But maybe it’s the... By Steve Tuffin3 min readBookmark for laterReactions 0 reactions Comments5 comments
It’s Okay If You’re Not Where You Thought You’d Be By NowYears ago I remember talking to some friends about what we envisioned for our futures—how our lives would look by the ages of 20, 25, 27… I remember saying that... By Sarah Lee2 min readBookmark for laterReactions 0 reactions Comments1 comments
A Look At The Difficult Journey of Spondyloarthritis TreatmentMany people outside of the axial spondyloarthritis (AxSpA) community do not understand that “treatment” is a full sentence. The symptoms of spondyloarthritis are ever-changing, full-body, and, oftentimes, not well understood... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments6 comments
My Husband and I Stopped Sharing a Bed Because of ASIf you are anything like me, sleep is vital to your existence and it is non-negotiable for my pain management. And while I can sit here and say this now... By Jes Hojsan2 min readBookmark for laterReactions 0 reactions Comments7 comments
3 Ways to (Gently) Work Out With AS on Flare DaysEveryone is at a different stage in their AS, which is why I'm recommending these three below ways to move with one clear caveat: Please listen to your body, and... By Lisa Marie Basile3 min readBookmark for laterReactions 0 reactions Comments7 comments
Blessings of My DiseaseAlthough being diagnosed with ankylosing spondylitis was a scary and uncertain experience, there are a lot of positives to come out of it. I began fundraising, something I had never... By Ali Long2 min readBookmark for laterReactions 0 reactions Comments1 comments
Diet Changes That Helped My ASLiving with condition like AS is not as simple as taking medicine and getting on with it. Medication can only do so much. I'm very grateful for how well my... By James Hollens4 min readBookmark for laterReactions 0 reactions Comments28 comments
My AxSpa JourneyI have lived with this condition for 30 years now. And I can say it has been a true rollercoaster ride for me filled with many ups and downs. Unfortunately... By Rene Agterhof2 min readBookmark for laterReactions 0 reactions Comments1 comments
The Importance of Sunlight With ASI've lived in New York City for nearly 20 years — and for most of it, nature was just not a priority to me. I relished the cement jungle and... By Lisa Marie Basile3 min readBookmark for laterReactions 0 reactions Comments12 comments
How To Be Heard With AxSpa: Doctor EditionHave you had a doctor make you feel like your pain wasn’t real? Or maybe they simplified your treatment by saying something like “this is going to be easily managed... By Jes Hojsan2 min readBookmark for laterReactions 0 reactions Comments0 comments
My 5 Things For a Better DayI’ve changed so much during my 20 years with spondyloarthritis that my 24-year-old self probably wouldn’t know me. She lived a life mostly in denial of her disability. That Dawn... By Dawn Gibson2 min readBookmark for laterReactions 0 reactions Comments2 comments
I'm So Sick of Brain FogDo you know what brain fog is? Maybe you have it, you just don’t know the term. Brain fog is characterized by forgetfulness, confusion, and a general lack of mental... By Steff Di Pardo2 min readBookmark for laterReactions 0 reactions Comments3 comments
Learning to Cope With Illness Isn’t A Straight PathIt’s a misconstrued assumption that those who have spent years with an illness eventually unlock some secret in managing it. I’m here to say that simply just isn’t true. There... By Sarah Lee3 min readBookmark for laterReactions 0 reactions Comments6 comments
Hold for Infections: My Recent Experience with Biologics and ImmunosuppressionMy life with biologics stretches back six years now. I was diagnosed nearly 15 years after initial symptoms appeared, and since I had been self-medicating with NSAIDs for years (without... By Jessica Gama2 min readBookmark for laterReactions 0 reactions Comments7 comments
When the Rain CameSummer 1999. I am working and earning good money as a self-employed carpenter. The kids are doing well in school and Teresa, my wife, has signed up at our local... By Steve Tuffin4 min readBookmark for laterReactions 0 reactions Comments4 comments
Hiking and DiscoveringLiving on a tropical island can surely be of great benefit during summer time. All the heat and high temperature makes you want to spend the day on the beach... By Gabriela Guadalupe3 min readBookmark for laterReactions 0 reactions Comments4 comments
Questions I Ask Myself When Seeing a New DoctorLet’s talk specialty physicians. If you grimaced at the thought of having this conversation, you probably have had the same experience that it seems like almost everyone in the AS... By Katie Saville2 min readBookmark for laterReactions 0 reactions Comments7 comments
Dealing With FOMOKeeping up with the boundaries and limitations can often be challenging. When everyone we know is out with friends and family, or going for long walks in the trails of... By Sarah Lee2 min readBookmark for laterReactions 0 reactions Comments4 comments
The Hidden Costs of AxSpACost (noun): something that is given, needed or lost in order to get a particular thing. Living with AxSpA comes at a cost. The explicit costs of living with AxSpA... By Jamie Shinkewski3 min readBookmark for laterReactions 0 reactions Comments3 comments