I've Hit Caregiver Burnout...Now What?I'm sitting here at lunch on a Friday thinking about how I'm going to get through the next 12 hours. I know what's coming. Dinner needs to happen. Kids need... By Auldyn Matthews2 min readBookmark for laterReactions 0 reactions Comments2 comments
Societal and Familial PressuresDisabled individuals endure many challenges throughout life. Living with an illness is exhausting both physically and mentally from a range of symptoms, attending a handful of appointments, and reoccurring flare-ups... By Sarah Lee2 min readBookmark for laterReactions 0 reactions Comments3 comments
Working Virtually Is A Pain!When the Pandemic hit, we were all sent home from our jobs and schools. For a while things were pretty easy breezy. Wake up when you want, eat when you... By Jed Finley3 min readBookmark for laterReactions 0 reactions Comments1 comments
My Blackout Lessons My household was caught in the midwestern regional blackout of 2021. The greater Detroit area-where we live-was especially hard hit. The day started out like any other. Meds, coffee, breakfast... By Dawn Gibson2 min readBookmark for laterReactions 0 reactions Comments3 comments
You Can Mask If You Want To!You can mask if you want to, even if you need to leave your friends behind. For me, and several other teachers out there, school has started up again. Our... By Jed Finley4 min readBookmark for laterReactions 0 reactions Comments2 comments
One Day I Went to Bed and Never Woke UpMy journey through living with chronic fatigue started about a year and a half ago. I can’t remember the exact day—everything seems to blend together these days. It truly felt... By Sarah Lee2 min readBookmark for laterReactions 0 reactions Comments3 comments
How Seeing My Symptoms Differently Changed EverythingI remember when I found out I had an autoimmune disease. Learning my body had begun to attack itself was a strange moment for me. I couldn’t get a particular... By Anne-Marie Raymond3 min readBookmark for laterReactions 0 reactions Comments13 comments
As We Gather: Hydrating Recipes for WellnessMonths have passed since the July 4th celebrations here in the U.S.A. Fireworks, camping trips, and picnics resumed by more than a million-fold this year. Life restored; the flow and... By Rebecca C5 min readBookmark for laterReactions 0 reactions Comments2 comments
3 Ways To Get An Energy BoostJust to set the stage-—I’m not the one with AS. My husband, Keegan, is. And I’m his caregiver. We both are at home all day. I work from my garage... By Auldyn Matthews2 min readBookmark for laterReactions 0 reactions Comments4 comments
The Long Path to DiagnosisI read recently that the longer it takes to get a diagnosis for AS the bleaker the long-term outcome for the sufferer. Teresa and I have talked a lot about... By Steve Tuffin5 min readBookmark for laterReactions 0 reactions Comments4 comments
Tips to Advocate for Yourself at the Doctor’s OfficeGetting my diagnosis, has been a bumpy ride for me. I had to see numerous doctors. Some that saying my mental health was the reason that everything that was happening... By Nicky Flikas4 min readBookmark for laterReactions 0 reactions Comments1 comments
My Family Doctor Gaslit MeUp until recently, I’d been pretty lucky with my doctors. My family doctor was the first doctor I told about my pain 4 years ago. She believed me right away... By Steff Di Pardo2 min readBookmark for laterReactions 0 reactions Comments5 comments
7 Years in No Diagnosis Land, Part 3: AnswersIn part 1, I told you how I experienced various symptoms for years without getting some answers. In part 2, I finally made progress once I decided to get involved... By Julie Vallortigara3 min readBookmark for laterReactions 0 reactions Comments4 comments
Mobility Aids Are FreedomMany people use mobility aids. These include canes, crutches, walkers/rollators, wheelchairs, etc. They are common things you can come across every day. I use my cane a lot when I... By Anna Samson2 min readBookmark for laterReactions 0 reactions Comments4 comments
Getting Over Humira Injection FearPicture this: I'm seven years old, and there are several large adults holding me down to a hospital bed so that a nurse could inject me with a needle. At... By Lisa Marie Basile4 min readBookmark for laterReactions 0 reactions Comments1 comments
How I Cope With Stiffness: Stretch Every DayI need to stretch every day. Without fault, my hips are always stiff and the only way to keep adequate mobility is to constantly stretch. Particularly, I’m almost always stiff... By Jamie Shinkewski3 min readBookmark for laterReactions 0 reactions Comments5 comments
Part One Of My Diagnosis Story: Getting Diagnosed in ChinaI thought I would share my diagnosis story with you guys for two reasons. Firstly, because it’s a pretty unique and crazy tale and secondly, to show to anyone who... By James Hollens5 min readBookmark for laterReactions 0 reactions Comments8 comments
Supporting a Partner with AxSpA Vol. 2 - Advice for OthersThis is volume 2 in a series of articles focusing on supporting loved ones with axial spondyloarthritis. The advice I would give to others with a spouse or family member... By Jessica Gama3 min readBookmark for laterReactions 0 reactions Comments2 comments
It's Not Working: Dealing With Treatment Disappointment“Try this, it will totally change your life!” “This amazing drug is now over the counter, I use it every day!” “All I need is 100mg of this and I'm... By Jed Finley4 min readBookmark for laterReactions 0 reactions Comments4 comments
How I Incorporate the Topic of AS into My College WorkI am a student studying Social Care Work. If you’ve read my article AS Doesn’t Give a Damn About College Deadlines or if you are a student, you will know... By Ali Long2 min readBookmark for laterReactions 0 reactions Comments1 comments