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Humira: What Should I Know?

About 3 weeks ago now I found out I have AS. I'm waiting on Medicare to approve my script so it's on the PBS.

I should receive it this week I'm hoping. Anyway, I have bilateral grade 2 AS amongst other health issues I have going on. I know there is no cure for AS so what will Humira do to help?

Is it supposed to slow it from progressing? Or will it just take the pain away?

Is there food you can and can't eat whilst taking Humira?

Anything I should know about? Thanks.

  1. 1. Many swear by it.
    2. The formula has recently changed
    3. Give it time.

    1. Hey - I wanted to share a some more info on Humira that we have: https://ankylosingspondylitis.net/treatment/humira/.

      Did you end up starting treatment?

      Sending positive vibes your way <3

      1. Hi Andrea,

        I have been on Humira for almost 2 years now. It has given me my life back. It slows the disease's progression and also reduces my symptoms.

        As far as I know, there are no foods we need to avoid being on Humira.

        One thing you should know is that Humira is an immunosuppressant, and makes you more susceptible to infection. We have to take extra precautions to avoid getting sick or getting infections.

        I hope Humira brings you the relief that it has brought me. Let me know if you have any other questions about my experience using Humira.

        1. I took Humira injections for six months, enduring several side effects (trouble breathing, burning and painful gums, hot/cold flashes). Then three shots of Enbrel- new side effect (developed 10 painful lesions on my scalp, currently waiting on results from dermatologist to determine if it’s plaque psoriasis or something else). I stopped the Enbrel. I don’t have any confidence in my rheumatologist- she completely blew me off when I told her the side effects (none of which I had ever dealt with). Told me I need to see a lung doctor, that it is not the Humira. (After being off Humira for a month, those side effects completely stopped!) I’m fortunate to live a couple of hours away from an excellent teaching hospital (UAB) and I have an appointment with a rheumatologist there though not until June.
          All this being said, pay close attention to any changes in your body when you’re taking the medicine. Note any changes and tell your rheumatologist immediately. My dermatologist suspects that I may not be able to tolerate TNF blockers, which both H and E are, but that will be addressed at my rheumatology appointment in June. (Kinda sad that I’ve learned more from my dermatologist than the rheumatologist!) SO - be certain that you have a doctor you feel confident in and that you and he/she communicate well. And remember that YOU are your best advocate and you should pay close attention to your body! Best wishes.

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