Hello, fellow pain partners! I was diagnosed with AS just about four years ago. I’ve been dealing with severe pain since 2008. I went to so many different Drs trying to figure out what was wrong with me and why I was always in pain. I would be told it’s deteriorated discs, an old injury, and was told about 10 other things before I finally found a good dr.
How do you deal with Drs that say you are dr shopping, but the only thing I was shopping for was an answer? They just kept sticking me on pain meds and physical therapy and it went on for years! When things got so bad that I could hardly walk because my hips hurt so bad, I begged my dr for another MRI, I knew something was not good. They refused and I then went looking for a dr that would take me seriously.
I found the best Dr I have ever had and right off he started trying new things, sending me to different specialists and he finally knew that I had AS, even before it was proven.
I’m now on medication that keeps the flare-ups down some, I’ve learned more about my disability and ways to help keep the pain in check as best I can. Having a good support team makes all the difference and I’m glad I never gave up and just listened to the ones who didn’t care. Make sure you don’t settle when it comes to your life!!!!! Thank you!
How long was your longest flare?