I Use Two Canes When Skiing
I've spent years being misdiagnosed, and now years trying to find a way to afford the medications that are supposed to slow the progression of my disease.
I am at the point where I use a cane to walk when I can and a wheelchair when I can't.
I have snow skied since I was 18 months old, and I fight to get up on the mountain for at least one trip a year. Still.
AS won't take that from me
This disease doesn't get to take that yet.
My husband worries every time I go but understands my need to keep this one thing.
My favorite argument when he reminds me that I can't even walk without a cane anymore..."But honey, when I'm skiing I have 2 canes'(my ski poles)."
He is never amused, but it's my rebellion against all the other things this disease has taken from me.
So here's to skiing with two canes.
Do you use the word disability to describe your AS?