I have had this disease since I was 12 yrs old. I am now 60 and every day it gets harder to get moving.
I managed my childbearing years with the help of chiropractic care and a spinal fusion at around age 27.
I was playing softball at church when I was 42. At about age 46 things really started going downhill.
The pain is too distracting
I am a registered nurse, and at age 48 I could no longer safely care for my patients.
The pain was just too distracting.
So, it has been twelve years now of extreme pain. I feel like giving up and just staying in bed.
My heart hurts that this has been going on for so long with very little relief.
Do you use the word disability to describe your AS?