Misunderstood, But At Lease We Have Each Other
It’s hard to know where to start.
I have had back problems since my late teens. I ended up having a ruptured disc, thanks to a chiropractor and had back surgery in my 30’s.
I was then diagnosed with DDD. I continued having problems and 12 years ago had another back surgery.
Change to "Issues after back surgery
This time I had a fusion with cage. The surgery was a success but aftercare wasn’t.
The drain tube had been pulled too soon and when I started leaking fluid from my incision, site the Dr sewed it shut.
This caused the fluid to create a softball size hole in my back and began a lifetime of chronic pain.
Being diagnosed with ankylosing spondylitis
I didn’t know I had ankylosing spondylitis until about a year ago, or less, I saw it on a report. I asked my pain specialist if I had it and he said yes.
Then, on my next visit, my PA asked and he said no. So who knows for sure?
All I know is I relate to all the pain, fatigue, ribs feeling broken, joints weak and painful and easily injured, and all the rest.
I’ve had tons of times I was ready to call it quits. I have good days and horribly bad days.
At least we have each other
I have very little understanding from my grown children but tons of support from my 83-year-old mom and my husband.
I try herbals and alternatives to help ease the pain and still have to take pain meds daily.
AS stinks and takes your life, making you create a new one.
Where would we be without the support of each other? We know that we understand what each one of us is going through.
I pray better and safer relief is found as I fear my oldest son has it.
Do you use the word disability to describe your AS?