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AS Is No Joke

I have experienced lower back and hip pain since my teens. We (parents and I) figured it might have something to do with falling down cement steps when I was 15 and broke my pelvis, lugging 4 brothers and sisters around, and working warehouse jobs. Who knows what caused it.

By the time I was RX in 2001, I had been living with lower back pain for 26 years, steadily getting worse. Finally, a rheumatologist found and diagnosed it. I also have fibro and arthritis from the bottom of my neck down.

If you want to play, you have to pay

I have tried biologics and can’t afford them now. Can’t take NSAIDs. I have taken so many that to quote my gastro my stomach looks like chopped liver. I still try to stay as active as possible. Swimming is one of the best reliefs.

If I make plans to do something, like ride long ways or go family function, the next couple of days I do nothing because I know I will pay. You know you play you have to pay. LOL

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.


  • Lawrence "Rick" Phillips moderator
    7 months ago

    I hope you will think about giving Rheumatology a second try. In the last 15 years or so so many new options have come into the market that has made such a difference for most us. These treatments may not work, but I hope you have a chance to look in on them.

    One of the newer innovations is that pharmaceutical companies are increasing their patient assistance programs. I know these programs have helped more of us living with AS to live better.

    Regardless, I wish you the very best. Do please stop by often and keep us updated.

  • chuzzy
    7 months ago

    I suffer terribly when I go visit my daughter. She is 7 hours from me. My husband refuses to fly. We finally put an inflatable twin size bed in back of my van and I ride most of my journey there. It has minimalized the repercussions of the trip! I felt great when i got there!

  • Anthony Carrone moderator
    7 months ago

    That’s so nice that you have the space to put an inflatable bed in your van. 7 hours would have been a long long time in a car seat! -Anthony (Team Member)

  • Jed Finley moderator
    7 months ago

    Pay to play is a great tag line for doing anything with AS. It’s unfortunate, but true. When we do something maybe a little bit active and fun we run the risk of paying with pain for days or weeks after. Thanks for sharing your story! Jed (Team Member)

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