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AS: The Never-Ending Chronic Pain

Ankylosing Spondylitis is such a debilitating disease that makes you feel like you’ve gone crazy all of the sudden! Those around you cannot see anything wrong and look at you as though you are just being wimpy and just can’t handle pain. You start to feel so isolated!

Recieving a diagnosis of AS

I was first diagnosed with psoriasis and shortly after, hashimoto disease. It was so devastating! Since then I’ve been hit with psoriatic arthritis, polymyalgia rheumatica, plantar fasciitis and fibromyalgia! I knew nothing about this disease that had invaded my life.

My husband, who is such a blessing to my life, decided we needed to learn all we could about this strange disease that seems to be attacking me from the inside of my body! Our immune system is what we rely upon to help us, NOT to come against us in attack mode. However, that is just what it does. That is why it is chronic! Because even when it lets up, it never goes away! The medicines and injections only hold it off or try to keep it from progressing but it doesn’t cure it!

My husband, my support system

My husband decided he wanted to go with me to every Dr appointment so that he could learn about this disease and be my support. If it were not for my faith in God and my understanding husband, I don’t think I could get through these days ahead. My family and friends are all great but they do not understand this disease and they do not see what I go through every day, so sadly I do not share much with them.

It is a huge help if you have someone who is special and close to you who really wants to go with you to Dr visits to hear what you are going through and to learn more about your disease. It is so important to have that comfort and support. Try to not isolate yourself, it’s a difficult disease and we all need support.

God bless you all.🙏

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The AnkylosingSpondylitis.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • cpace63
    4 months ago

    God bless you and your husband. My husband is understanding and will fight the world but he has his own health issues but my daughter goes with me some and she wants to know all the new MRI results and the sed rates and all that other stuff from the blood work. You right about having someone in your corner most people don’t see it so it can’t be that bad right.

  • Jed Finley moderator
    4 months ago

    Sounds like a wonderful daughter to be so invested in learning about your health. Having someone to accompany you to doctors appointments particularly is really important because it always helps to have 4 ears listening to what the doctor says. Especially if your brain fog is thick that day.

  • deb2010 author
    4 months ago

    So happy that you have your daughter, in your corner, that support means so much. I’m sorry your husband has health issues also. It can be difficult when you both are in pain. God bless both of you.

  • Lawrence "Rick" Phillips moderator
    5 months ago

    Deb, I too have a wonderfully supportive spouse. When I was diagnosed with RA we went to the car and had a great cry, then we started. When I was diagnosed with AS we did the same. Good cries are a good start at our house.

    Thank you for your story. I wish you the very best.

  • cpace63
    4 months ago

    I cried with my daughter with the AS fibro disc degenative disease and all , my husband held me while I cried. When he was diagnosed with stage 4 lymphoma and it caused problems with other organs I cried again while he held me but he says it is what it is. I don’t know that he will ever cry.

  • deb2010 author
    4 months ago

    I’m so sorry your family is suffering so much. Chronic pain everyday can cause you to feel hopeless at times and just want to give up. I completely understand those feelings, especially on days that I’m hurting so much, difficulty sleeping, feeling that my pain is never ending. I try to remember the verse found in Deuteronomy 31:8, and I know I’m not alone. God bless you and your family.

  • deb2010 author
    5 months ago

    Rick, we’ve prayed and cried together too, especially on those more difficult days. It’s such a blessing to have their support. It’s also nice to have all these great, caring Forums to share with one another. There are many others suffering with AS or RA and other chronic diseases that need to know they aren’t alone, that we are all here to support one another. I wish the best to you also.

  • Lawrence "Rick" Phillips moderator
    4 months ago

    I cannot imagine having an autoimmune disease without family. No one should ever have to do one of these things alone. No one.

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