I am 49 years old, going on 50 soon. I have had back and neck pain for years. I started to notice it after I had a major brain surgery in 2000.
The surgery lasted about 11 hours. After that I started having migraine headaches a lot. I guess my neck was aggravated during surgery. Have went to chiropractor for years after that, just to get temporary relief.
Pain and discomfort
Finally, I had a single layer discectomy and fusion of my c6 and c7 vertebrae. Helped migraines, but still a lot of trouble. I still have bulging disc in my neck and upper back. Arm numbness and tingling . A lot of pain and discomfort. Especially in morning and when I get home from standing at work a lot.
I have trouble with taking deep breaths, and for the longest time I though I had heart trouble. I have a bad case of Kyphosis. Grandmother had it, my mother had it, I have it, and even my 21 year old daughter has it. I was diagnosed, tentatively, with AS about a year ago. Doctor that did my fusion said no more chiropractor.
Hoping for change
So, I have been living with it. I have went to my first appointment with a rheumatologist a few weeks ago. He said I have Diffuse Idiopathic Skeletal Hyperostosis “DISH”. He put me on some pain meds.
I have a follow up in 3 weeks. Hopefully he will do something else.
I am calling this week to see if we can do appointment earlier. I am just too uncomfortable. Can’t sit still, but can’t move too much. I need relief.
Do you use the word disability to describe your AS?