My AS Story: Flares Getting Worse

Last updated: December 2021

Hi. First post. I was diagnosed in my early 20s. I’m now 37. It all started with iritis (uveitis) which took months to get under control. The following year I started getting what I thought was sciatica. I took many months to get a diagnosis until HLA-B27 was discovered.

Anyways, I managed to get control of my AS for many years. I would say my AS was always just in the background. I had a few flares in ten years. Nothing too bad. However, over the last 2 years everything has got out of control.

Flares getting worse, what do I do now?

I have pain in my lower back, neck, shoulders, ribs, knees, wrists and ankles. The fatigue is wipe out stuff. I spend any time I get off from work in bed with my electric heat pillow, I’m tired but unable to sleep.

I’ve been on adalumumab injections every two weeks since April 2021 without any success.

I’ve ran out of hope now. Nothing seems to help. I can’t take my anti inflammatory (arcoxia) anymore as it has wrecked my stomach. Is there anything I could do to try turn things around ?

Thanks

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