What Is AS Like? Well...
I was diagnosed about 3 years ago, after my pain management doctor couldn't help me with my pain anymore. So he referred me to a rheumatologist. I went to see my new doctor and was amazed that I had AS. I didn't know what this meant but maybe it could "fix" me.
Tired of being tired
Well...3 years later and not much has changed exept, more meds, still have pain, and not many answers to this. I am tired of people looking at me and thinking, "oh she is just depressed" or just "faking it". "I don't see anything wrong with her".
I get so tired of being tired and trying to explain my pains to people. So, I just am putting on a "smile" and go about my days. Then when I get home I dread getting into my bed, well because it hurts me!
My "new normal"
I used to show horses, and I haven't even been on my horse for almost 2 years now. I am trying to find a hobby that I can do that doesn't hurt...HA! I am turning wood now and as long as I keep doing it and thinking of the shape or wood or? I am ok but when I stop it is all I can do to get moving again.
It is just my "new normal" and I don't like it! But until I die or find a cure this will be me.
Do you use the word disability to describe your AS?