Stories

Diagnosed with RA at 17. Changed to "psoriatic arthritis" at 25. Had X-ray bombardment at 18. Could have caused leukemia, but didn't. It helped the lower spine. I'm 76 now...

I have been diagnosed with Ehlers Danlos syndrome, since my Sister died in 1996, and with it ankylosing spondylitis, among many, many other medical issues. In the beginning, we saw...

I am a 52 year old male with the hlab27 gene. I have 6 children and ten grandchildren. 2 of my children also have AS. I was first diagnosed with...

I'm a 51 year old male with HBP and AS, using NSAIDS for the AS and the flare ups. I was supposed to start Humira before the pandemic but I...

It's been almost four Winters I have begged for help With all that has been going on W/in and w/ out.. Four Winters, just about when my long blond hair...

I am the classic "late diagnosis". I am 54 now, and was diagnosed with A.S. three years ago. My memories of back pain go way back to my childhood. I...

What’s wrong with my son? I asked doctor number one. He’s perfectly fine. He should go out and just have fun. But his chest pain is bad When he plays...

My AS started as a teenager but back then all they called it was “bad back”. I am now 72 and have name for my back ailment.   I am...

So right now I am definitely (hopefully) in the peak of my condition. My AS has been super intense with flares and inflammation after the birth of my second son...

I was diagnosed with rheumatoid arthritis in 2017. I've tried about 8 medications. I am now on Simponi Aria infusions. I started having severe back pain about 6 months ago...

I'm 64 and went to a chiropractor for the first time for pain in my mid-back that just would not go away. Since I was a new patient he did...

I was diagnosed in 1978. I have had 2 hip replacements and surgery on both hands. I use a hot tub daily and it really helps. I'm also on pain...

I had just given birth to a healthy 8 pound baby boy, unknowing that I was waking up a health demon! It was 29 years ago on June 12th that...

5AM She rolled over Wrapped in her skeleton Devoured by it’s pain No No No Don’t roll again Ashamed, a shame, a pain She lifted her body Off the bed...

Hi all! So here's my story, eight years after being diagnosed I'm finally researching about AS, hearing other peoples' stories and learning of alternative treatments. I was diagnosed with AS...

We all know the look to well. Often accompanied with an eye-roll, sigh and something along the lines of “I’m tired too”. This is different. I did not party, work...

What is Ankylosing spondylitis? If you Google it, the definition states, "An inflammatory arthritis affecting the spine and large joints. The condition is more common among men and usually begins...

I am so frustrated and angry. I moved 3 years ago and can't find a rheumatologist in my area that doesn't want my medical records before they will even make...

I had my first low back pain “attack” at 14. Doctors gave me pain meds, muscle relaxers and said go home and use a heating pad. That one lasted about...

I love reading and spend a lot of time in my chair with my neck bent down or in bed on my side reading. My physical therapist suggested I get...