History of My LifeI was a swimmer and dance coach but with my untreated autoimmune disorder back in childhood (vitiligo) I experience sharp flare up suddenly in age 21! Loosing several kilograms in... By Yeganeh.MAugust 24, 2021Bookmark for later Reactions 0 reactions Comments7 comments
Failed back surgeriesHi I am 56 years old. Back in 2007 I was diagnosed with A.S. I had lower back surgery an 11 hour operation to fuse my lower back. In 2020... By DannyB 1965August 9, 2021Bookmark for later Reactions 0 reactions Comments8 comments
Evolution to AxSpA DiagnosisI was diagnosed in 2014, with AxSpA after a MRI confirmed inflammation in areas of my spine. For the last three years I've been fighting for disability benefits since. I... By dmcclellanAugust 9, 2021Bookmark for later Reactions 0 reactions Comments3 comments
A Man is Pain and His MusicHi, as a boy I used to carry coal as we owned the local coal business. I was into my sports rugby wrestling and many more . In my late... By yesitsme23August 9, 2021Bookmark for later Reactions 0 reactions Comments6 comments
Long Ago I Recieved A Wrong DiagnosisDiagnosed with RA at 17. Changed to "psoriatic arthritis" at 25. Had X-ray bombardment at 18. Could have caused leukemia, but didn't. It helped the lower spine. I'm 76 now... By JasbeauJune 10, 2021Bookmark for later Reactions 0 reactions Comments1 comments
Where to Go?I have been diagnosed with Ehlers Danlos syndrome, since my Sister died in 1996, and with it ankylosing spondylitis, among many, many other medical issues. In the beginning, we saw... By AngeleighJune 10, 2021Bookmark for later Reactions 0 reactions Comments2 comments
It Could Be WorseI am a 52 year old male with the hlab27 gene. I have 6 children and ten grandchildren. 2 of my children also have AS. I was first diagnosed with... By CindclinMay 25, 2021Bookmark for later Reactions 0 reactions Comments2 comments
Ankylosing Spondylitis , Gout and DiverticulitisI'm a 51 year old male with HBP and AS, using NSAIDS for the AS and the flare ups. I was supposed to start Humira before the pandemic but I... By ArnaldoMay 25, 2021Bookmark for later Reactions 0 reactions Comments0 comments
Invisible & Not Believed. A Poem By Sherry LIt's been almost four Winters I have begged for help With all that has been going on W/in and w/ out.. Four Winters, just about when my long blond hair... By momof1May 25, 2021Bookmark for later Reactions 0 reactions Comments6 comments
My Diagnosis Lead To Two Things, Only Two....I am the classic "late diagnosis". I am 54 now, and was diagnosed with A.S. three years ago. My memories of back pain go way back to my childhood. I... By Landers66May 25, 2021Bookmark for later Reactions 0 reactions Comments3 comments
My Son, the ZebraWhat’s wrong with my son? I asked doctor number one. He’s perfectly fine. He should go out and just have fun. But his chest pain is bad When he plays... By BRKTMKApril 8, 2021Bookmark for later Reactions 0 reactions Comments6 comments
AS and Colitis with Abdominal PainMy AS started as a teenager but back then all they called it was “bad back”. I am now 72 and have name for my back ailment. I am... By ScifimomApril 8, 2021Bookmark for later Reactions 0 reactions Comments0 comments
No One Gets It...So right now I am definitely (hopefully) in the peak of my condition. My AS has been super intense with flares and inflammation after the birth of my second son... By jpjpMarch 30, 2021Bookmark for later Reactions 0 reactions Comments15 comments
Trying to Find Answers After Being Told Different ThingsI was diagnosed with rheumatoid arthritis in 2017. I've tried about 8 medications. I am now on Simponi Aria infusions. I started having severe back pain about 6 months ago... By dblack9394March 23, 2021Bookmark for later Reactions 0 reactions Comments2 comments
Just Diagnosed with Ankylosing SpondylitisI'm 64 and went to a chiropractor for the first time for pain in my mid-back that just would not go away. Since I was a new patient he did... By Michael JMarch 23, 2021Bookmark for later Reactions 0 reactions Comments3 comments
Living at Age 67 with ASI was diagnosed in 1978. I have had 2 hip replacements and surgery on both hands. I use a hot tub daily and it really helps. I'm also on pain... By living67March 3, 2021Bookmark for later Reactions 0 reactions Comments13 comments
Canceled DreamsI had just given birth to a healthy 8 pound baby boy, unknowing that I was waking up a health demon! It was 29 years ago on June 12th that... By mamalisa1967February 10, 2021Bookmark for later Reactions 0 reactions Comments4 comments
5AM: A Poem About Ankylosing Spondylitis5AM She rolled over Wrapped in her skeleton Devoured by it’s pain No No No Don’t roll again Ashamed, a shame, a pain She lifted her body Off the bed... By biancawhiteFebruary 10, 2021Bookmark for later Reactions 0 reactions Comments5 comments
Finally Getting a Grip on ASHi all! So here's my story, eight years after being diagnosed I'm finally researching about AS, hearing other peoples' stories and learning of alternative treatments. I was diagnosed with AS... By jpjpJanuary 18, 2021Bookmark for later Reactions 0 reactions Comments8 comments
Every Day is a MarathonWe all know the look to well. Often accompanied with an eye-roll, sigh and something along the lines of “I’m tired too”. This is different. I did not party, work... By isadoraonfireJanuary 18, 2021Bookmark for later Reactions 0 reactions Comments4 comments
