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How are everyone’s treatments going?

I’m struggling to find the right treatments to manage AS. I do also have RA, so I’m not sure if that’s the reason. But as far as I’m told the same meds that treat my AS treat the RA.

I’m wondering what everyone’s tried. I have a few rheums, plus my gastro doc working together struggling trying to figure out why I’m not responding. It’s been almost 2 years. And my AS and RA have progressed so much and I have frequent bad flares.

I’ve been hospitalized even in summer because I lost the ability to use my legs. I was paralyzed for almost 2 months. Then slowly 3rd month started getting function back. Docs think it was medication-related, guillain barre syndrome, or because my spine was so inflamed at the time that it compressed it so much that it affected my legs.

I just signed up on this. I’ve never been part of a support group. I’m not sure how this works. But I’d love to hear back from ppl❤️xoxoxoxoxo❤️


Community Answers
  • Edith Lalonde
    1 month ago

    Hi Kory,
    I’m newly diagnosed with AS, and am still waiting to see a rheumatologist for a treatment plan, but wanted to get on here to say I feel your pain, and I hope you find something that works soon!

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