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2nd Generation AS Patients: Passing The Torch

Question for those with AS who have children who were also diagnosed:

How did you explain to your kid(s) what AS is and what to expect?


Community Answers
  • Auldyn Matthews-McGee moderator
    4 days ago

    I just had a baby last year, and my husband has AS. I’m very nervous for her, and I’m not sure when we should get her tested for the genetic marker. I know girls are less likely than boys, but I still worry.

  • chuzzy
    2 weeks ago

    I have vitiligo, another auto immune disease. My son has had back problems since his 20’s and now has vitiligo. I just know he has AS and hate that for him. He has not been tested.

  • Lawrence "Rick" Phillips moderator
    2 weeks ago

    Chuzzy,

    I do hope your son will find his way to a rheumatologist if he needs one. I am sure that with your help he will realize the need for an in depth consultation.

    Rick (Site Moderator)

  • coffeeandspoons 3781
    2 months ago

    I don’t have kids so I don’t have to worry about answering that to kids. I explained to my siblings as a back issue in which I feel a lot of pain. That it’s another auto immune disease. As I have ankylosing spondylitis

  • Jed Finley moderator author
    2 weeks ago

    Thanks for sharing that. When it comes to explaining to the kids in my life, saying “I have a bad back” is about all I feel I can give them.

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