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How long did you experience symptoms before being diagnosed?

Many people have experienced symptoms of AS for quite some time before being diagnosed. Some were misdiagnosed, others dismissed as simple back pain. What was your experience like?


Community Answers
  • TheNudeWriter
    4 weeks ago

    Hey Anthony, thank you for asking. I’ve actually been pretty bad for a few years. All my medications made me sick and I’ve been trying to cope. 8/10 pain has become my baseline.

  • Anthony Carrone moderator
    4 weeks ago

    Coping with 8/10 pain seems nearly impossible, especially when medicaitons are making you sick. I’m sorry to hear you’ve been dealing with it for so long. Have you found any coping mechanisms that help you? -Anthony (Team Member)

  • TheNudeWriter
    4 weeks ago

    I was diagnosed when I was 22, but I first felt something was wrong probably when I was 16. Initially I didn’t worry too much, but when I was 18 I took my health seriously. After diagnosises of Fibromyalgia and chronic fatigue, I was finally handed my AS diagnosis.

  • Anthony Carrone moderator
    4 weeks ago

    Hi @TheNudeWriter, I’m sure it was somewhat of a relief to finally get an accurate diagnosis. So many people are dismissed or misdiagnosed for a long time. How have you been feeling recently? -Anthony (Team Member)

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