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How can someone help their family and friends understand what they’re going through?


Community Answers
  • Jed Finley moderator
    3 months ago

    One of the most important thing you can do is tell them that you don’t like what is going on any more than they do. Along with AS comes fatigue, grumpiness, missed work, unmowed lawns, unwashed dishes, and unsatisfied spouses (if you catch my drift). AS takes away a lot, and often makes the patient feel they have lost value in their relationships. Tell them that you would love to be the person they want and need you to be, but it might not come exactly when they want it.
    The pain from AS is more powerful than most people could ever imagine, and it lasts forever and a day. So it the fatigue. In my personal experience, the best thing you can do is sit with your family and work out a plan. Explain to them that you will need to take breaks while doing chores. Tell your kids you can’t pick them up but seated hugs are really nice too. Make sure there is an understanding of what you can do and that what you do, might take a little bit longer.

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