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Is anyone diagnosed with Non-Radiographic Axial Spondyloarthritis?

@eathomas is looking to connect with others who are diagnosed with non-radiographic AxSpa. Jump in the comments below to connect!

Community Answers
  • Fiona C
    1 week ago

    Yes. I was diagnosed in 2014 just before my 28th birthday. Eye doctor figured it out because I had iritis and he asked me about my back/joints. I’m HLAB27 positive and have no signs on xrays of damage. I started on sulfasalazine pills but my liver didn’t agree so I was put on enbrel. I’ve been taking that for years. Feel free to ask me any questions!

  • mrduncan
    2 weeks ago

    Yes, I’ve had it since 2003. I’m also HLA-B27 negative.

  • Lawrence "Rick" Phillips moderator
    2 weeks ago

    hello MrDuncan. I had Non-Radiographic Axial Spondyloarthritis for several years. In fact my doctors were convinced that the issue was not AS at all. I did respond well to RA medications and I still do. However, my spinal surgeon felt differently. When I finally had Spinal Laminectomy and that sealed the deal.

    My surgeon was absolutely convinced that I had AS and sure enough as things progressed the x-rays demonstrated the issue. I do not blame the doctor he was following the best information until it was shown.

    It just goes to show that AS is very difficult to DX.

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