How My Music Helps Me Relax: 5 SongsI’ve been thinking about some of the things I do to relax. Not just relaxing my bones or my body, but relaxing my mind – de-stressing my overactive brain. I... By Steve Tuffin5 min readBookmark for laterReactions 0 reactions Comments2 comments
My AxSpA-To-Go StrategyWhen I first started taking biologics, first Humira and now Amgevita, multiple people encouraged me by telling me that many people “get back to living a normal life.” It was... By Jamie Shinkewski2 min readBookmark for laterReactions 0 reactions Comments2 comments
Committing to a Team With an Unpredictable IllnessI’ve been figure skating for much longer than I’ve been chronically ill. To me, nothing is more freeing than gliding across the ice, carving grooves with my blades, and feeling... By Cassia Pelton2 min readBookmark for laterReactions 0 reactions Comments3 comments
My Second Birthday With AxSpaMy second birthday being sick was thankfully a lot better than my first. I made a plan of what I wanted to do. I planned to rest in between so I could... By Ali Long2 min readBookmark for laterReactions 0 reactions Comments6 comments
How I Approach The Holiday SeasonThe Christmas holidays are approaching! For me, this means taking time off work, traveling back home to be with family, eating delicious food, and making more time for rest and... By Lana Buettner2 min readBookmark for laterReactions 0 reactions Comments3 comments
Switching Biologics With AxSpaSwitching meds. No big deal right?! This one in particular wasn’t successful but not to worry, there are so many biologics on the market to try. Something as simple as... By Jes Hojsan2 min readBookmark for laterReactions 0 reactions Comments8 comments
Relationship Red Flags: Can They Really Accept Your Illness?There was a time in my life where I had been in a relationship for about four years. After this relationship fell apart I began to dissect it and realized... By Sarah Lee2 min readBookmark for laterReactions 0 reactions Comments3 comments
How Journaling Has Helped My Chronic Illness JourneyI’ve loved journaling since I was a kid. Whether it was a secret diary stored in that special hiding spot or a notepad filled with letters, quotes and scattered doodles... By Sarah Lee2 min readBookmark for laterReactions 0 reactions Comments0 comments
Accepting a Chronic Illness Takes TimeIt has taken me a long time to accept that this disease is here to stay with me and it’s not going anywhere, any time soon. A lot of the... By Nicky Flikas2 min readBookmark for laterReactions 0 reactions Comments11 comments
Learning to Love My New, Disabled BodyMy whole life I’ve been skinny. With comments as a child like “you’re a twig!” and “you’re so bony”, I got used to that being a part of who I... By Steff Di Pardo3 min readBookmark for laterReactions 0 reactions Comments1 comments
Setting Goals for a New YearSince I received my diagnosis, I kind of let go on making goals that I really want to achieve. I would like to change that, as a New year is... By Nicky Flikas3 min readBookmark for laterReactions 0 reactions Comments0 comments
Having a Good Rheumatologist AppointmentAs sad as it is, having a good doctors’ appointment is harder than it seems to achieve. Far too often, I’ve had a not-so-great experience with a doctor, and I’m... By Steff Di Pardo2 min readBookmark for laterReactions 0 reactions Comments1 comments
Hands Off My Crutches!Mobility aids should be seen as a blessing for people like us with conditions that can affect our mobility. Surely it’s a no-brainer to leave the house on crutches or... By James Hollens3 min readBookmark for laterReactions 0 reactions Comments8 comments
Don't Let a Smile Fool YouBehind that smile of mine, hides many things, that I decide who to open up to and tell. Would you be able to tell that I have an invisible illness?... By Nicky Flikas3 min readBookmark for laterReactions 0 reactions Comments0 comments
Major Surgery With AxSpAAfter a diagnosis of a chronic condition that degrades your joints over time, it isn’t surprising you may eventually need surgery. But grappling with surgery and recovery with a condition... By Pamela White2 min readBookmark for laterReactions 0 reactions Comments8 comments
Pain and SleeplessnessI’ll be honest, I’ve always had some trouble sleeping. As a kid it would take me several hours to fall asleep, but once I was asleep I’d be out like... By Anna Samson1 min readBookmark for laterReactions 0 reactions Comments2 comments
Experiments While I’m Waiting for a CureDo you remember the first question you asked when you were told you had AS? For me it was immediate - “Is there a cure?” I remember the kindly face... By Anne-Marie Raymond2 min readBookmark for laterReactions 0 reactions Comments4 comments
I Bought an Ankylosing Spondylitis Friendly CarYou can read my article "Driving Difficulties with Ankylosing Spondylitis" to see the difficulties I had driving my Mini. My Mini Cooper was my first car, and oh I loved... By Ali Long3 min readBookmark for laterReactions 0 reactions Comments7 comments
Preparing For My Rheumatology AppointmentsNo matter how many times I’ve seen my rheumatologist, I always find these appointments a daunting experience. I feel nervous. Many thoughts run through my head: What if my condition... By Ali Long2 min readBookmark for laterReactions 0 reactions Comments1 comments
My Altered Breakfast RoutineI have never been a good breakfast eater. I am not a morning person and to be able to have a meal in the morning has always been a challenge... By Jamie Shinkewski3 min readBookmark for laterReactions 0 reactions Comments9 comments