Navigating Winter Walks: A Guide for Dog Parents With AxSpaWalking my dog outside during the wintertime is a form of torture I don't wish upon anyone. As walking her is something that I have to do, rather than something... By Tomesha Campbell2 min readBookmark for laterReactions 0 reactions Comments4 comments
Ten Years With AxSpa - My Longest Relationship!Ten years with my dark passenger (for those who watched Dexter 😉), my longest relationship! Oh...we had some big fights, some crises, and some resentment along the way. I cried... By Julie Vallortigara4 min readBookmark for laterReactions 0 reactions Comments1 comments
Reflecting on Life When My AS Was UndiagnosedAs a lot of us do around new year, I was reflecting on 2023, which got me thinking about life now compared to before I was diagnosed. I was diagnosed... By Joy Tilbrook2 min readBookmark for laterReactions 0 reactions Comments1 comments
Navigating AxSpa Research and New DiscoveriesDid you know that researchers discovered the connection between HLA-B27 and AxSpa in the early 70s? And that biologics were introduced in the late 90s and early 2000s? I didn’t... By Auldyn Matthews2 min readBookmark for laterReactions 0 reactions Comments1 comments
Navigating the Maze: Inconclusive Tests and Life Beyond Axial SpondyloarthritisYour results came back inconclusive. When I heard those words, I couldn't help but feel disappointed and a twinge of anger. After months of waiting to hear about the results... By Tomesha Campbell3 min readBookmark for laterReactions 0 reactions Comments4 comments
Re-Thinking a Career That Works for ASFinding a job that works for AS can be hard. I recently had a coaching client who realized the job he once loved was making life with AS worse. It... By Anne-Marie Raymond2 min readBookmark for laterReactions 0 reactions Comments5 comments
The Art of Unwinding: Taking a Solo Trip to a Cabin to DestressBeing a stay-at-home parent, living with AxSpa, and dealing with fibromyalgia isn’t just enough for someone’s plate, but makes one’s plate overflowing. Keegan, my husband with AxSpa, recently celebrated his... By Auldyn Matthews3 min readBookmark for laterReactions 0 reactions Comments2 comments
How I Have Improved My Sleep With AxSpaTo kick this blog off, I’ll mention that this journey to improve my sleep came from having a lot of fatigue. Although I could sleep well and still feel fatigue... By Jamie Boder4 min readBookmark for laterReactions 0 reactions Comments1 comments
Keeping A ScheduleI'm a teacher. When I was on summer break this year, I missed a few things. My students, my co-workers, a steady salary.. But what I miss the most is... By Jed Finley3 min readBookmark for laterReactions 0 reactions Comments2 comments
The Combo of Getting Sick and Having AxSpaWhen I try to tell my friends and family that I'm vulnerable to getting sick, they act like I'm whining and complaining again. Sometimes they say: "Everyone gets sick in... By Nicky Flikas2 min readBookmark for laterReactions 0 reactions Comments2 comments
Winter Weather Survival Tips for Those With Chronic Joint Pain“Winter is coming. We know what is coming with it.” -Jon Snow As Mr. Snow says, winter is coming, and with it, a lot of challenges for individuals living with... By Jed Finley3 min readBookmark for laterReactions 0 reactions Comments1 comments
Finally Growing Used to My Bi-Weekly InjectionsIt has taken over two years, but I am finally growing comfortable with my self-administered injections. In June 2020, I began using adalimumab as my primary treatment. It was the... By Jamie Shinkewski3 min readBookmark for laterReactions 0 reactions Comments1 comments
AxSpa and Sicca SyndromeIn the common sides effects of Humira, you can find a long list of things. I think I have Sicca syndrome, including dry eyes and dry mouth. In fact, when... By Julie Vallortigara2 min readBookmark for laterReactions 0 reactions Comments9 comments
Doing Better With ASDoing things can be difficult when you’ve got axial spondyloarthritis and fibromyalgia. Motivation is nothing compared to pain and fatigue. No matter how much I wanted to do things and... By Anna Samson2 min readBookmark for laterReactions 0 reactions Comments1 comments
When Friendships Don’t Survive Your Chronic IllnessLil and I met at work in our early 20s. She was hilarious and outrageous and we clicked instantly. Going anywhere with her was an adventure. Something spontaneous would always... By Anne-Marie Raymond2 min readBookmark for laterReactions 0 reactions Comments6 comments
Another Year Older With AxSpaAnother year has passed and I made it through. Turning 36 years old, another year of AxSpa by my side. I thought by now things would have been a bit... By Nicky Flikas3 min readBookmark for laterReactions 0 reactions Comments4 comments
The Healing Power of SillinessAny parent of a 4-year-old and 2-year old will admit that things tend to get pretty silly in their house. Add in an AxSpa diagnosis, and silliness becomes a core... By Auldyn Matthews3 min readBookmark for laterReactions 0 reactions Comments1 comments
When the Cost of Care Makes Access an IssueWhen I was growing up, my family reserved hospital visits for emergencies that couldn't wait until the doctor's office opened in the morning. During that first year of my diagnosis... By Tomesha Campbell2 min readBookmark for laterReactions 0 reactions Comments4 comments
Dealing With the Lack of Knowledge of AS in HealthcareBefore I was diagnosed with ankylosis spondylitis, I’d never heard of it. I spent a lot of time researching my condition, then explaining to friends and family what AS is... By Joy Tilbrook3 min readBookmark for laterReactions 0 reactions Comments4 comments
My 4 Arthritis Self-Care BasicsSelf-care makes up a substantial portion of our quality of life, but like good food, safe shelter, and a healthy environment it often gets less attention than our social life... By Dawn Gibson2 min readBookmark for laterReactions 0 reactions Comments4 comments