Living

Everyone deals with pain and fatigue differently. Those are my main symptoms from AS and fibromyalgia. My fibro diagnosis came a few months after my AS diagnosis. At first, I...

Content warning: Eating behaviors and nutrition. There are usually three camps when it comes to managing ankylosing spondylitis (AS) and other chronic inflammatory conditions. The first is the pharmaceutical camp...

I once worked for a company where the notion of positivity was prized above all else. Falling short of your sales target? Stop finding excuses! Current system not working? Stop...

I did “the big ride of the season,” at least for me. It is the big bicycle ride in downtown Indianapolis; it is called the Indy N.I.T.E. Ride. It started...

Another night waking up in tears. In tears from not knowing what to do because of the continuous excruciating pain that I have been feeling again for a few nights...

We most commonly associate the term grief with death. It’s used to describe the emotional state we experience when someone close to us passes away. In its simplest form, though...

I was diagnosed with ankylosing spondylitis the year before I became pregnant. At the time, I was living in the Chicago area and had access to excellent medical care. I...

A diagnosis can change everything. Suddenly, we’re thrust into a new world of doctors' appointments, treatments, and lifestyle changes. And while having a sound support system, in general, is essential...

I moved to Orlando, Florida from NY about a year ago. I wanted a better environment for my children as well as for myself, the bitter cold weather of NY...

Of course I was very excited to explore Mexico and the USA, but I had no idea how things were going to pan out. I had planned as much as...

Do you ever get the idea that your joints and you have a distinct difference of opinion about which way to go? This morning when I woke up and was...

I’ve been using mobility aids for a while. My main two have been my rollator walker and my cane. If you’ve seen me on Instagram, I’m the girl with the...

I remember the good ol' days of flying to a new city or country and spending the entire flight in a mindset of enchantment and excitement. I’d order a glass...

Accessibility has been a hot topic lately. People have been speaking out about inaccessible buildings, damaged wheelchairs, illegally parked cars in blue spaces, and other serious topics of interest. But...

If I had a dollar for every time I've been told "but you don't look sick" I would be rich by now! I mean, what does a sick person look...

Back in the freedom of our pre-Covid world I was lucky enough to attend a specialist self-management course for ankylosing spondylitis at a community hospital here in Melbourne. The course...

Traveling has looked very different for a lot of us over the past 2 years. For me, I haven’t gone anywhere that requires a flight. I’m just not ready for...

My husband Keegan finally hit the point where his AS was stable. The last few years brought lots of challenges that impacted his AS: 2 babies, 2 total hip replacements...

Six months ago I had to undergo hip surgery to fix some long-term issues which caused me a lot of pain and limitations in my movement and exercise routine. You...

I used to be one who could quickly work out for an hour or more every day and never feel tired. I could also go out on long runs without...