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Managing Painsomnia

Sleep advice is like cold remedies, everybody has one, but what works for you is the only thing that matters. Don’t worry, I’m not here to tell you that the cure to AS painsomnia is hiding from you on a far flung mountaintop, the result of finally doing “one weird thing” right you’ve been doing wrong all along, or yours for just $19.99. There’s no one cure for AS painsomnia, but there might be some ways to feel better.

Sleep and rest with any chronic illness can feel like a catch-22. Most of the discussion around sleep is geared toward preventing illness, but what about if you’re already sick? There is no sick cliff. Our needs for sleep and rest don’t evaporate just because we’re sick. In fact, it just intensifies, often without the reward of waking up refreshed. This is what makes painsomnia such a serious matter.

Do your painsomnia homework

Try to get a general sense of how much sleep you’re getting with journaling or a fitness tracking app. If this isn’t doable it might be worth asking your doctor about a sleep study.

Consult your pharmacist about how treatments might impact your sleep. A pharmacist might be able to work on a new schedule or new approaches to treatment. Either way, don’t miss out on the valuable insights only a pharmacist can provide into how medications can make patients feel.

Check with respected organizations working in rheumatology. They work with researchers to get the most current information out to patients and clinicians. Here is what The SAA has to say about PainSomnia.

Adjust expectations

Living with AS is not the same as not having it. It may take time to find the best way for you to get adequate rest. Cultivating an open flexible mindset can help you discover what works for you. Notice I didn’t urge you to stay positive. Just try to be constructive in your actions around sleep and rest. You deserve to be well cared for, even though you’re already sick.

Get help

Speak honestly with your health care providers about any sleep issues you have. Don’t just accept that you’ll sleep poorly for the rest of your life. Don’t tough it out to avoid looking weak. Painsomnia can dramatically reduce your quality of life, this is not a time to go it alone.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The AnkylosingSpondylitis.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • Denise Spencer
    4 months ago

    On top of having AS I need hip surgery too.

  • Lawrence "Rick" Phillips moderator
    3 months ago

    Hello Denise: I have also had hip replacement, though mine is now seven years old. It is the best decision I made outside of marrying my wife.

    I hope you find comfort here in our community.

    rick – site moderator.

  • Auldyn Matthews-McGee moderator
    4 months ago

    My husband just got done with a double hip replacement! What kind of surgery are you having to get @denise-spencer? I hope that it brings you relief! – Best wishes, Auldyn [Team Member]

  • Jed Finley moderator
    7 months ago

    Great article Dawn! I really enjoyed what you had to say. Solid advice 👍🏻

  • Dawn Gibson moderator author
    6 months ago

    Thanks!

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