Ankylosing Spondylitis In America Survey: What's That?
Ankylosing spondylitis (AS) is so much more than just back pain. It affects how you sleep, what you eat, and so many things in your day-to-day life. We want to learn more about your experience with this serious condition. We're conducting our annual survey to learn more about the challenges of life with AS.
What’s the survey about?
The survey covers “basics” like diagnosis and treatment experiences, but also dives into the nitty-gritty, like what every day is like living with AS. We hope to learn more all things AS, including surprising symptoms, financial impacts, and quality of life.
All survey responses become property of Health Union, LLC, and are kept completely anonymous, confidential, and reported in total (your specific responses will not be reported individually).
Why should I take the survey?
Each person who takes the survey contributes to a better understanding of AS awareness and knowledge, and can help others who are dealing with AS to feel less alone. Sharing your experiences through the survey can reveal the similarities, and differences, between each person’s journey with AS, and can bring greater awareness to this condition that affects so many people.
What Will the Survey Ask Me?
The survey will ask about diagnosis, symptoms, symptom management, quality of life and relationships, healthcare professional engagement, and treatment awareness and experience. We do not require your name, address, or other personal information.
Please note that you do not have to take the survey all at once. Feel free to bookmark the survey in your Internet browser and return when you are able. You will resume where you left off.
How Do We Use the In America Survey Data?
Survey responses help us and our partners better understand the AS community. All survey responses are kept confidential, reported only in total (your specific responses will not be reported individually), and will become property of Health Union, LLC.
What happens after I take the survey?
After the survey closes each year, the Editorial Team at AnkylosingSpondylitis.net takes your responses and creates an infographic to share the community’s experiences, and highlight important findings from the survey.
But that’s not all – throughout the year, we publish articles and videos based on learnings from the survey. We hope that this survey-driven content contributes to the information available to those affected by AS, and helps them connect with those who have walked the same path.
Still have questions? Comment below, or email us at email@example.com for more information.
Do you use the word disability to describe your AS?