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The Constant Struggle of Fatigue

Fatigue is something I don’t think I’ll ever escape as a sick person. As sad as that makes me, it’s just something I think we all have to accept and try to live with. The monster we all hate, fatigue.

When I first got sick I dealt with this a lot. It was almost impossible to go out for a day (or even half a day) without being in bed for days after. Since I started my biologic treatments, it’s gotten better, but it definitely hasn’t gone away. Sadly, I don’t think it ever will.

Trying to be “normal”

Just recently, within the last week, I decided to try to be a “normal person” again. I wanted to do 5 busy things in 5 days. What a mistake that was. To be fair though, when the Raptors make it to game 5 and could win it all, I think going to downtown Toronto on a Monday is a good exception.

My body didn’t think so. I had my infusion the next day and that was it for me. I got my usual infusion headache and was exhausted for the rest of the day. Wednesday my nausea decided to attack me. I was nauseous from the moment I woke up to the moment I went to bed. Never sick, but nauseous the whole day. Can I just mention that being nauseous all the time and not quite knowing why is EXTREMELY frustrating?

The outcome

Thursday, my body was so fatigued that I could barely get out of bed. My legs were weak, my eyes heavy, and I couldn’t focus on anything. I decided to give myself a day to stay in bed and sleep. I slept til 4:30 pm. Luckily as the night went on I felt a little better, but my legs never really got back to normal.

I’m writing this on Friday, and I’m still exhausted. I could barely sleep just due to the discomfort of my body all night. I know we all have these nights, and it’s so much worse when you have something to do the next day. Luckily I don’t, but I’ve been to those early morning doctor’s appointments with very little sleep. It isn’t fun.

Sticking to our routines

Fatigue is an everyday struggle for those of us with not only AS, but all chronic illnesses. I know how important it is for us to keep to our routines, but with life taking over lately, yoga and eating healthy have just gone out the window. I know how bad this is for fatigue, so please try to stick to what you do every day as much as possible. We need our routines to help us function every day. But of course, if you need a day or two in bed, please give yourself that. It’s so important. I’m sure if I didn’t give myself that, I would have burned out very soon.

Sharing what you know

As annoying as dealing with being tired all the time is, it’s something that we have to learn to live with. I’m not saying we have to accept it and get used to it right now, but I feel if we all share what it is that helps us during these times, we can help others find what they need during times of extreme fatigue too. If you have any tips, please comment with them so we can get them circulating in the community! I know this is an important topic because it’s the one that plagues me the most.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The AnkylosingSpondylitis.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • Janny
    1 month ago

    The only thing that I’ve found so far to do is take a full day to sleep when I get so tired that I can hardly function. Eats away at my sick/vacation time but what can you do?

  • Lawrence "Rick" Phillips moderator
    2 months ago

    I am afraid I tend to drive myself to exhaustion, then I collapse until I get my routine back. Of course you can do that but I do not suggest it. So many times our way to cope is not a decent strategy to live by.

    Mine is bad, but it does work, somewhat.

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