Using Assistive Devices
Ankylosing spondylitis can cause pain, swelling, and stiffness in the back and hips along with other joints such as the …
Living
2nd Generation AS Patients: Passing The Torch
Question for those with AS who have children who were also diagnosed: How did you explain to your kid(s) what …
Spondylitis Communication 102: Telling Your Truth
Communicating about spondylitis can be one of the most frustrating parts of being sick. Not knowing what to say can …
A Visit With Uncle Chuck!
On Memorial Day this year, I visited with my uncle, Chuck. You should know that I am 62 so as you …
What Do You Do When You Flare?
Flares are unpredictable and often seem unmanageable. To help people who feel they are out of options, we are asking.. …
What Did I Do Wrong This Time?!
How often do you have a “bad day”? A day when you didn’t think you did anything wrong, but for …
No One Told Me
I didn’t know I had ankylosing spondylitis until I was reading a medical paper that had to do with my …
Spondylitis Communication 101: Saying No
Communicating about chronic health issues is challenging under the best of circumstances, when people are aware of the illness and …
I’m the Life of the Party!
Ask anyone who has met me, and they will tell you I am the life of the party! I am …
What An Infusion Is Like
So, just before I start this article, I wanted to mention that I have been on the Biosimilar Inflectra (Remicade …
The Wrong Approach
Finally getting a diagnosis made me reflect on how I managed my back issue (diagnosed or otherwise) very poorly. Firstly, …
Breastfeeding, Babywearing, and Boredom
I didn’t realize that my entire experience with motherhood depended on a healthy, strong back until I no longer had …
Welcome, Friends!
I used to love to use the app Stumble Upon. The way it worked is I would enter the website …
Let’s Talk About Sex!
Ankylosing spondylitis (AS) is a chronic inflammatory arthritis that primarily affects the spine and hip joints, although it may affect …
It’s Not That Easy!
Let’s not hold back here, Ankylosing Spondylitis sucks! We wake up in pain, live in pain, and attempt to sleep …
Spondylitis Cooking 101: Getting Started
I’m not the only one struggling to keep up with cooking and cleaning. My food allergy diet is an important …
What Foods Make You Flare?
It seems everyone has a certain food(s) they avoid because it causes their symptoms to flare. What foods have you …
Explaining To Children Why You Can’t Play
Oftentimes when we are around young children, they want to run, kick a ball, or wrestle. But, sometimes our AS …
My AS And The Relief Of Getting Diagnosed
Earlier today I was sitting in the doctors waiting room filling out the questionnaire about my current condition that I’ve …
Managing Painsomnia
Sleep advice is like cold remedies, everybody has one, but what works for you is the only thing that matters. …