anthony.carrone
We learn a lot from our diagnosis through experience, trial and error, and sharing information. What's one thing you wish you would have been told when you were first diagnosed?
rustytinman Member
How I would be robbed of quality of life, even if I did everything I was told to do to battle this disease. How I would be affected both mentally and physically. How bad the fatigue and exhaustion would be.
Rebecca C Moderator & Contributor
big sur Member
how bad the pain would always be tired.
Rebecca C Moderator & Contributor
LisaWY Member
I wish I had been told that the drugs for AS were not as bad as the drugs for MS. I wish I had been given the MRI and x-rays, etc right then so I could see the damage done. I widh I had been told about the pain in my future. It. wasn't. real. then.
Jed Finley Moderator & Contributor
Tich Member
I wish I were told how people in Europe, Asia and Montana have been using low-dose radiation therapy to treat AS since the 1940’s. TNF inhibitors don’t work for everyone.
Tich Member
https://pubmed.ncbi.nlm.nih.gov/33396815/ Also…
Charles L Sanders and Jerry M Cuttler have been working in this area a long time.
Rebecca C Moderator & Contributor