Hello new friends! Thanks for reading and being here!
I was diagnosed with AS April 2020 and it's definitely been a life changer.
Everything started in January of last year with terrible headaches and body aches that landed me in the ER. After several visits with my PCP, xrays, CT's, and multiple blood tests, I was found to have positive HLB-27 gene, positive ANA, and inflammatory markers were all elevated. I was referred to rheumatology and thankfully got in within about a month. At my first visit and after the multitude of questions she diagnosed me with spondyloarthritis.
I have tried a few different oral medications. Currently taking sulfasalazine and naproxen daily. Have tried humira but had flu-like reaction and felt terrible for weeks after only one injection. I was afraid to take this medication again after reading more about it . My inflammatory markers have stayed elevated for over a year and a half now. Can't seem to get them in normal range even with the medication. My rheumatologist now wants to put on me on a new injectable medication Cosentyx. Has anyone tried this medication? I'm nervous about taking biologics.
Aside from the everyday fatigue, back, hip, knee, and wrist pain, the worst part is constantly getting sick. It was not well communicated when I started the sulfasalazine that it is an immunosuppressant (I guess like most of these medications are). So I feel like I'm constantly sick. I've been dealing with chronic sinus and upper respiratory infections. Fevers that last for weeks. Even more body aches and fatigue that makes it hard to get out of bed.. When I miss work, I'm out for week(s) at a time because it takes me forever to recover. Then is seems like a vicious cycle because when I get sick they have me stop the sulfasalazine and then I have a flare up. Does anyone else experience this? It definitely takes a toll on you mentally because you feel like no one understands what you're going through.
I'm so appreciative and glad I found this community! I am trying to do what I can to have a more positive mindset despite my chronic illness.