Starting biologics?
Hi all,
I was diagnosed with AS over the summer and have tried NSAIDs, PT, Ibuprofen, etc. and I'm still not finding much relief from the stiffness and back pain. The PT has helped marginally. I can definitely move better and the stretches help with the stiffness but I still can't walk more than a few blocks or sit for more than an hour and forget about laying on the couch or sleeping on my stomach. I just feel like I can barely go an hour without thinking about my back, how stiff it is, what it's keeping me from doing, etc. and that is with seeing some improvement from PT! My doctor today suggested I try Humira. We went through all the side effects, he did assure me that lymphoma is the least of his concerns, which is comforting, I guess? The main thing i'd like to hear is some of y'alls experience on starting biologics and how you knew you were making the right choice? Part of me feels like I should wait and see if the PT and exercise help things or if by waiting I'm just kicking the can down the road and exposing myself to my symptoms getting even worse. What helped you guys make the decision to start a biologic and do you feel like it was worth it?
Like I am sure many people, I was stunned after my diagnose and chose denial until I ended up with such a severe flare. I used Humira and Methotrexate for about 12 years successfully. It helps to slow progression of the disease. Because Medicare does not cover biologics at a reasonable price. I now take Remicade infusion and sulphasalazine. My advice is, if you need more help, take it!!
Hi I've been diagnosed by AS after the severe active uveitis in my eyes with no available option except Humira to secure my eyes. I'm on Humira for almost two years and it's very good with me reducing all the severe symptoms of AS accompanied by active uveitis.
I started Simponi after I was diagnosed with AS in August ‘21. Like you, PT, ibuprofen, and naproxen didn’t help enough. Simponi has enabled me to go back to work. I doubt I would be able to without it. I also take 1 mg of methotrexate once per week, but my rheumatologist is hoping it is temporary and that I will be able to taper off it soon. I hope biologics work well for you! Hi there. Before I had my cardiac issues resulting in me not being able to use pretty much ANY meds to manage my pain and stiffness (because I am on blood thinners), I used to use Ketoprofene very successfully. Have you tried that?
Since my diagnosis with AS last year, I was immediately put on Taltz (there was little else I could take) and have been pleasantly - if gently - surprised, and have had no issues with it, nor with getting Covid vaxxed. It has definitely been of help.
