Pain shaming
Has anyone gone to doctors or physical therapists and they basically shame you for your pain? I had a nasty flare and could barely walk. I was using a rollator walker and then progressed to a cane and then normal ambulating over a 2 month period. I went to PT and they kept questioning why my pain scores were not getting better. Clearly, I did not want to be in pain but I was honest about it. The PT was getting frustrated with me because the pain was not getting better. At the last session, she told me that I was not getting better because I was afraid of the pain. In essence, she was pain shaming me. Super frustrating and costly to end with a session such as that. I stopped going and I think I need additional exercises now but I am afraid to go again because of the bad taste from the last PT. With copays, it is expensive and time consuming to be treated like that. Anyone else feel this way? Did I just get a bad PT?
I am so sorry that you have experienced that. It’s unfair and unprofessional and simply cruel. I have experienced pain reduction from people and doctors — and shock that I need so much pain medication (like ibuprofen), as if I’m making it up. It’s ridiculous what we have to deal with. Luckily we have this community. I had a new rheum tell me she didn't think I had A/S! I have been to 2 specialists before her and had the testing/Xrays, etc. To back up the diagnoses! I don't see her anymore. It was quite funny...I laughed and said...ok, then! 
@CommunityMember396 I am sorry you had to hear this. I know sometimes it can take more than one specialist to see that's willing to listen and help. Are you being followed by a rheumatologist now that can help ? How are you feeling today?
Nicky (Team Member)
Hi Redheadedmum
Who in their right mind wouldn't be afraid of pain? I know I am. What I have learned, however, is the more I relax - which is the polar opposite of what I want to do when I am in pain - the less intense the level of pain. I don't know how you learn to do that though. Do you have anyone who can help with pain management? I know in the UK we have a pain management department in the hospital.
It's tough when you've had a bad experience but I hope you are able to get the support you need soon.
Best wishes
Steve (Community Advocate)
