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Have you tried the low starch diet?

If so, what was its effect?
And how flexible were/are you with the foods you eat?

  1. I generally eat lower carb than mot Americans. The reason is that i have type 1 diabetes. Being low carb does not entirely mean low starch. But being low starch is part of being low carb.

    What I can say is that i have never noticed one wit of difference in any levels or how i feel when i venture off the beaten path or become more stiff as a result how much i do or do not have in terms of carbs. I know others disagree and I understand. As for how low can you go? People in the diabetes community have as few as 25 net carbs per day. In order to do this they generally follow the Bernstein diet.

    If you wish to get as low as possible you might check out his diet program. People do well with it.

    1. Thanks . I thought all this while that anyone with AS would be avoiding starch given it’s correlation to the inflammation. And it seems that it isn’t necessarily this way. Good to know!

      1. So many in this community have benefited from dietary changes.
        I do hope some will chime in here on the effect of a low starch diet and what a difference it made for them.
        ~Doreen (Team Member)

        1. Hey, I am a new member here from Germany and thought I would share my low/no-starch experiences. I came across Prof. Ebringer's research and thought of it as a hoax at first. I am currently doing my PhD in chemistry and thus tend to question things for their legitimacy. However, since I have university access to most medical journals and the basic biological knowledge to read those articles, I began venturing into the research myself and was surprised to find very strong evidence in many peer-reviewed journals regarding the effect of low starch intake on inflammation - not just from Prof. Ebringer.
          I was diagnosed last year and put onto Etoricoxib 90mg, but I had terrible side effects so I felt like an alternative is needed. I stopped the NSAIDs and suffered terrible pain. However within 3 days of starting the no-starch diet, my pain decreased by 80 - 90 %. I could not believe it. I manage to maintain my pain at low to very low levels now and my ESR went down from 32 to 20 mm/h within the first month. I notice differences depending on what I eat. Small amounts of rice can be fine occasionally but eating starch daily is not working for me. Especially sauces thickened with starch or processed foods made from flour are a no-go for me.

          I wish medical research was more widely available to the general public and I can only speculate on why these relatively new findings have not made their way into most rheumatologists' offices... maybe pharma companies realise that you cannot earn money with a diet? Who knows!
          There is a great, recent peer-reviewed article in the Journal of Microbial Pathogenesis (Li Zhang, et al., Microbial Pathogenesis 117 (2018 ) 49–54) which I highly recommend reading if you have access. It summarises nicely the advances of the current research and states that a low-starch diet should be recommended to all people diagnosed with AS as additional measure to keep inflammation under control. I hope such groundbreaking research can be more widely distributed to help more people suffering from AS and not just remain buried in some journals which are only read by a few select researchers.

          1. ,
            Thank you for sharing your experience and insight. It's great to hear that lowering your starch intake has made a difference for you. It sounds like you have had access to a great deal of research on the subject. For others, that may be interested, we recommend having a conversation with their healthcare provider prior to making any dietary changes.
            All my best,
            Doreen (Team Member)

          2. thank you for sharing! There’s a dearth of resources and experience here in Singapore on Ankylosing spondylitis and I appreciate the info shared. Can I check if you are still on Arcoxia or other medicines to manage your pain?

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