Has anyone else been told that AS is not a Disability?
I was diagnosed in February 2021. The specialist that I see for treatment has started my on Humira after 12 months of unsuccessful treatment on 3000mg daily of Sulphasalazine. He stated that there was significant damage when I was diagnosed. So after the year of medication, pain and discomfort that I can’t even put into words and now waiting for whatever side effects the Humira will cause. I asked him about the possibility of me applying for Disability Retirement. I am within 5 years of being able to take regular retirement anyway and 5 years seems like a long time right now. My treating physician said “your disease is not a disability”. I guess I am trying to cope with the thoughts of just how horrible I will have to get before this is considered a Disability? Because it sure feels like one.
Hey
- Thanks for starting this conversation. I help manage this community, and I can tell you that I've heard many people share that they've been told the same. The truth is that AS is a disability. Many others here have been successful in applying for disability benefits, although sometimes it is a struggle. Here are some articles and info we have the subject: https://ankylosingspondylitis.net/video/patient-experiences-disability-benefits, https://ankylosingspondylitis.net/living/applying-disability-allowance, https://ankylosingspondylitis.net/living/applying-disability, https://ankylosingspondylitis.net/resources-ssdi. I've also posted a link to this conversation on our IG page to help get you some more responses from others who have been in a similar situation.
I hope this is somewhat helpful!
Sending vibes for comfort and relief soon,
Anthony (Team Member)
