June 18, 2019
Flares are unpredictable and often seem unmanageable.
To help people who feel they are out of options, we are asking..
What do you do when you flare? What puts out or dampens the fiery pain you feel?
July 9, 2019
As mother, it's hard to just drop everything adn take the day for myself. So I have a flare contigency plan. A village & players in place to do pick ups and drop offs. I work immediately on pain management. Email my HCP to let him know I'm having an issue. Then binge on old episodes of the X-Files or The West Wing. I order in food and ask for help around the house if I need it.
I use some disposable heat pads and a heating blanket. I also use topical creams like Topricin because it has no smell and is non-greasy.
(ankylosingspondylitis.net Team Member)
August 5, 2019
I sometimes use ice and sometimes heat, whichever helps the most. I sometimes walk and move and sometimes just lay or relax with ice/heat. There seems to not be any one thing that works for all flare ups.
August 9, 2019
Thanks for sharing. As I alway love to point out, treatment is a bit of a moving target. You gotta keep adapting. Hopefully something works and it's easy to find.
August 16, 2019
My husband is the one who has AS, and there are a few things. If his flare up is due to a severe shift in weather, it's a bit of a "wait and see."
Other than that, he tries to make sure it's not stress-related, and if it is, address the stress somehow. My insurance covers parts of massages, so that's been a big help for him when stressed is involved.
I know there's a fine balance between just enough movement and too much, but if he stays in bed, it'll usually get worse. Small walks are the best bet for him.
August 16, 2019
Auldyn, Thanks so much for sharing your husban's story.
I'm doing the same with the stress and have focused on it as my main treatment plan right now. It kinda falls into the theme of my first article "What Did I Do To Deserve This?" I want to make sure my thoughts and feelings weren't contributing to my pain. So far my regiment of heart health and mindfulness seems to be working!