Feeling pretty low
Going through an incredibly emotional trying time right now with martial issues and then today I got word that my humira can't be filled until I get a new rheumy, which next available is 5/4. I just started crying. My rheumy quit and he was sole practitioner and I had taken a job whose insurance for me kicked in 2/1. I had timed everything perfectly after checking last month with insurance during enrollment. So my old insurance I was able to get through my last dose on 1/29 with the assumption I was going to be and to fill under new insurance. Well that didn't happen and literally no one will help. I called my primary, gastro, pysch, even urgent care and ED, all said sorry we can't. Has this ever happened to anyone? I finally got my AS under control with humira and is been such a game changer on my life. I'm terrified of going back to being in pain all the time which is not being helped with the marriage issues; I'm already at rock bottom emotionally. Thanks for reading my rant. Trying to stay positive but this sucks. I battle with depression and am on medication as well as therapy. I already have challenges with what's going on right now and the prospect of facing months ahead like this is not good. I do not wish to use narcos and I unfortunately cannot take nsaids. I've been practicing mindfulness and using CBD and medical marijuana.
Thanks to you both for your kind words. It's been such an incredibly difficult time and just when I thought I was picking up the pieces of myself I got shattered again yesterday. I've been hyper focused on diet and exercise these past few weeks to avoid flaring up as much as possible and had been in agreement to work on reconciling with wife. I quite literally had just told my therapist earlier in the day yesterday about my fears of abandonment and wife not wanting me, which is what happened yesterday afternoon when she told me she didn't want to do this anymore. I always knew that I would physically decline as years go on and the associated mental toll that would take on her and I and I honestly don't blame her for wanting to leave to go be happy. I'm just sad and feeling incredibly alone with not much hope. I don't want to become a burden for my kids as time goes on and mess up their lives anymore than I already have.
Just overwhelmed at moment as my last 10 yrs was just tossed on it's head for what I thought it was and thought it was going to be. Everything is going to go away, house, car, lifestyle and it's a lot to digest.
Hi
,
I am ever so sorry to hear that you have had to go through all of this and are feeling pretty low at the moment.
It must be frustrating that you have quite a wait before you can visit the rheumatologist, but fingers crossed it will be worth the wait and they can get you back on treatment to get your condition back under control and the pain down.
Having a chronic condition can be a mental battle as a physical one and having other issues going on in our personal lives can make both of these things harder.
I find in these times it helps to talk to someone, whether that's a friend, a family member or even someone online. Don't feel as if you have to bottle things up and fight this battle alone.
Sending positive vibes,
James (Community Member)
I am so sorry this is happening. Rheumatology issues and doctor access issues are tough all alone but when they are working together that is just almost impossible.
Here is the good news, once you get back to humira your pain and stiffness will likely improve. Now the issue is how to get things resolved. I am afraid I do not have a way to help out. But do know that we on this site do understand. I am hopeful that you will know that we do understand............................................ rick
