I think its important to highlight that not everyone with AS is HLA-B27 positive. Let me know if you are positive or negative!
I'm HLA-B27 negative.
Hi Rafael, sorry for the late response. I get lost sometimes then discover conversations from way back.
I agree with you. It does make life a little more difficult to begin with anyway. Fortunately, whether I have AS or not doesn't seem to be up for discussion. Not from me and not from them. It does become apparent wventually. Thankfully.
I hope you are keeping well.
Steve (Community Advocate)
I am HLA-B27 positive. Or as my wife says,
"rick you are lucky I let you live here in my presence". Oh, maybe we were talking about something else.
I came up100% positive for the HLA-B27 and found out a little over a yr ago. It took my own research and changing doctors, health plans, etc...and 3 yrs to get the diagnosis. I didn't want it, but I knew I didn't have everything else all others were trying to tell me I had. Hahaha...I should give my hubby a medal of valor for his continuing emotional support! Or maybe that's just my sleeplessness talking,, lol
I am HLA B27 +
I am HLA-B27 positive. I have had a diagnosis of AS for nearly 40 years. During this time I went to several different rheumatologist due to moving or Dr leaving, etc. Several times with a new Dr, when I said I had AS they would all but say I was lying. Three, yes “3” times I’ve had my HLA-B27 tested. Then these Drs would look at my X-rays and say, “You have AS”! You just have to keep a sense of humor!
I am HLA-27 positive. With that being said, my two closest friends who also have AS are both HLA-B27 negative. It breaks my heart because I was diagnosed within 5 months of my symptom onset because I was positive. They were not so lucky and had to fight for their diagnosis' just because they were negative. Definitely needs to be more awareness surrounding this topic! -Katie, Team Member
I am negative too. My wife and I agree, looking back, I probably had it at least 10 years before it was diagnosed. It certainly would explain a lot. Here in the UK (sorry, I'm not sure if you are here or in the US), there has recently been a drive to reduce the diagnosis time. Apparently, people like me, who went a long time before getting diagnosed, have not such a rosy longterm outcome. Having said that, I am doing okay, I think, given that I am in my 22nd year of being diagnosed.
On we go. :0)
Steve- Community Advocate