27 years old w/ AS and a full hip replacement
Hi there! I'm new here and was just looking for some tips on how everybody handles their AS and if anybody here takes Low Dose Naltrexone. If so does it help you?
I was diagnosed roughly 5 years ago and received a full hip replacement due to the AS. I was taking Humira every two weeks but it was causing me to get sick regularly so I am now switching over to LDN.
Currently I am having a horrible flare up because I have not been taking any medication for a few months. I am in good shape and eat pretty well. What are some tips and tricks you guys have to help?
Thanks in advanced for any help at all!
I have not, but I am curious about how LDN helps people? Would love to hear how it helps as well as side affects.
LDN did nothing for me. Biologics are best. I used Humira until it stopped working, then went through a number of biologics until insurance finally approved infliximab (Remicade/Inflectra). It seems infliximab is the gold standard but infusions required and can be expensive without good insurance and copay assistance. For flares I use 75mg BID diclofenac as well as Epsom salt baths, massage, yoga, meditation, heat/ice, compression braces/socks as appropriate. Pretty much anything to help reduce symptom severity/longevity. Good luck! 
Hi Snook, sorry for the very late response. Hot shower in the morning, and evening, really helps me. I don't/can't bath, much as I would like to. Getting in and out is too much of a chore. I'd also recommend a sauna/hot tub or steam room. All of those things really help ease my bones. And, as someone else mentioned, Naproxen is good to take the edge off. Then there's beer. :0)
I do hope you are feeling much better now.
Best wishes
Steve (Community Advocate)
Hey bud, I know this is a little late but I started taking LDN about 7 months ago. I felt amazing on it for a while but I think its lost its affect on me. I have that issue with all medications I've been on though including 4 biologics. They all work great for awhile then it seems to wear off. Just keep that in mind you could be different and it could work indefinitely. I started out with .5 milligrams and after a week or so bumped it up to 1 milligram. Then after a few more weeks 1.5 and so on. I still take it though cause I think it is still helping and I just recently bumped it up to 2 milligrams and I do feel less pain and am sleeping better. I'm getting it through a pharmacy in town where I live but I tried to switch over to some LDN that I ordered off the internet and noticed the internet LDN was garbage and I felt terrible on it so had to switch back over so keep that in mind too. Hope this helps bro!where do you live where you just get it off line? Is it a prescription? I live in Texas. Just google online LDN and a bunch of sites will send it to you. The only problem is the LDN online may not be any good. The LDN i ordered online was garbage but that could've just been that one site. so keep that in mind.
