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This is the great thing about being an old fart. I no longer have to care or care about caring all that much.
When I was younger I once went to a conference without a tie. My boss said where is your tie, I said I don’t care about that. Yes he said. The thing about not wearing a tie is that it shows you are either to young to know better…
You can read more about the symptoms of AS here: https://ankylosingspondylitis.net/symptoms/
Long story short, AS can really affect any part of the body! I have had some mild cardiac issues but I don’t know if they were related to AS or not.
All the best to you!
Welcome to the community, we are here if you need any support.
Welcome to the community, Jane! We are here if you need any support.
Thank you for joining, the community welcomes you!
Welcome! We hope you find support in this community.
The AS community welcomes you, James!
Thank you, Edith! It’s nice to know that you can relate.
It’s hard for me to decide exactly when and how to express the pain I’m in. Sometimes it is easier to pretend I’m not, to avoid judgement. But at the same time, hiding it is exhausting. I wish there was a simple solution.
Great article. Hit so many of the emotional pinch points I’m currently going through. Thanks for this.
Great article. Often feel the same! Sometime wonder why I try so hard to hide how much physical pain I’m in. Trying to do better, but I’m still a work in progress.
Turn my walls into doors.. I love that. Such a great Manta. I think we all can learn a lot from what you say.
Thank you so much for being a part of our community.
For me, levity is key. If I can’t get my clothes on after I shower? Great time to read a few pages from whatever novel I am reading. Can’t cook? Get a frozen bag of soup or spaghetti out of the freezer and nuke it. Can’t convince my husband I need a new tool? Go get it anyway.
Lawrence, thanks for taking the time to read this. And yes, it really still is something that feels like a lot.
And I’m sorry people say that to you. It sucks!
It’s life-changing and hopefully we can all take something (anything!) positive away from this.
I agree, Lisa. I’m so sorry you feel the same way. It’s so hard to accept sometimes. I hear you too. Sending all of my love!
Oh wow, that’s amazing Rick! I’ve been using my exercise bike here and there for some cardio, I do love it a lot. I’m excited to try my bike out in the summer!
Thank you so much, Jed! It’s so true, it’s one of the hardest parts of having a chronic illness. Slowly learning what works best for me!
I felt much the same way about AS, when I was diagnosed. I knew i had AS, but getting someone else to figure it out was a lot, still is.