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Pain all the time
I have had cortisone shots in both hip joints at once several times. Also have had one in my shoulder joint. They didn’t hurt while getting them at all and I never had any pain with them except minor soreness at the injection site. I get them when my remicade infusions aren’t enough, mostly because I also have bursitis that acts up from time to…
We did what we tended to do with bad medical news. We went to the car and had a good cry. We did this with RA, open heart surgery and all the rest. We did the same with AS. We had our cry, said we will figure this out and off we went.
My wife offered me some gravel outside of a Ben & Jerry’s 😂 No, it’s not fun at all.
Ive been really good lately, but it’s also been quite depressing. There is just so little I can eat, but it has been worth it in the long run. Thanks for reading and commenting!
I love that idea that we all have a secret. Hits the nail on the head. It becomes the one of which we do not speak.
It does feel like acting, or like a huge secret we keep as we move through our day to day.
Such a good point. Vulnerability is underneath everything, and it can be beautiful and empowering.
This is SO beautiful. Thank you. As a patient with AS (also with a partner like you who is understanding), it’s so refreshing to hear you say things like, “And for Keegan, it meant seeing life in a new way.” That is such a simple and perfect way of putting it. It IS a new life.
This is such a good post, especially because of its honesty. For so long, I’d hear of people doing the AI protocols and I’d think, ‘How on earth are they doing it?’ But the truth is, it’s not fun or easy, and I shouldn’t assume it is for anyone — it’s rough, and you just proved that. I will be honest; diet has been the last pillar for me. I s…
Thanks for this! In the beginning, the pain was my worse than the fatigue. For some reason, I’ve gotten weirdly “friendly” with my pain. It’s like my twin, always following me around. I can predict it. But the fatigue is so ever-lasting, so hard to ignore or work around, that I think that’s the worst.
Thanks for this. I appreciated your detail — and I’m sorry that the injections didn’t really help. That sucks! Here’s to you finding something that provides relief, at least for a little.
I get the cortisone shots about every 6 months My Dr puts my under general anesthesia for the procedure. I am only under for a few minutes. Normally I get anywhere from 2-4 injections. They work great for me. I get them in my back and SI joints
Jayson Sacco was diagnosed at age 14 with Ankylosing Spondylitis. This was before internet or any of the extensive knowledge or medications available now. Through the years due to AS, he has had multiple Iritis […]