Latest in the Community
Sore and tired
I’m doing pretty good today. Only slight stiffness in my middle back and some knee pain.
Haha! Not a bad way to spend some extra spoons! -Anthony (Team Member)
Happy for sunlight.☀️
I started using a cane about 20-some years ago. That’s usually all that people see. But before I go to bed, I have wrist braces, elbow sleeves, compression socks & knee supports. I probably look more like a quarterback than someone ready for bedtime.
Thanks, Jed! You’re right, it can be so hard to know what to say, how to say it, or who is safe to talk with. #Sigh…
This gave me the warm fuzzies. Sharing our condition can be daunting, and very uncertain. But, your tips gave me a shot of confidence. Thanks Dawn!
Andrea, that was so well written! Thank you so much for sharing! As an advocate, I am so thrilled to see you are more willing to be open and honest about your illness. We always need more patients speaking our truth.
My name is Andrea (39) and I live in New York (not the best place to live with AS). The weather here really impacts my daily life. When we go from 76 degrees to 42 and rain, I can feel the change in my body. I can […]
Oh they will be used by the 5 month old standard poodle puppy… he’ll get to decide for me!😂
I know what you mean ablut jumping around in your story. There is just so much im sure you want to say about AS and how it impacts you.
Wooo!! That’s always a good thing! What are you gonna do with them? -Anthony (Team Member)
I have been living with AS now, well probably my whole life, but have only big diagnosed the past 2 years.
I broke my L5 when I was just walking down the street I heard a snap fell to the […]
I have extra spoons today….maybe 😁
Glad you were able to connect with this article. It is really hard not to play the game. Letting go and doing your best, is a great way to live. And if you are hurting from doing something you love, it shouldn’t stop you from continuing to do it and love it. Thank you for your comment.
Jed Finley (Team Member)