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nene commented on the post, Using Assistive Devices 2 days, 16 hours ago

I started using a cane about 20-some years ago. That’s usually all that people see. But before I go to bed, I have wrist braces, elbow sleeves, compression socks & knee supports. I probably look more like a quarterback than someone ready for bedtime.

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Jed Finley commented a story 4 days, 9 hours ago

Andrea, that was so well written! Thank you so much for sharing! As an advocate, I am so thrilled to see you are more willing to be open and honest about your illness. We always need more patients speaking our truth.

It’s funny you say “she wouldn’t do the things she does…” When everyone was dumping buckets of ice for ALS. I dumped a bucket…

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Andrea Ortiz shared a new story 4 days, 9 hours ago

My name is Andrea (39) and I live in New York (not the best place to live with AS). The weather here really impacts my daily life. When we go from 76 degrees to 42 and rain, I can feel the change in my body. I can […]

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Andrea Ortiz shared a new story 4 days, 14 hours ago

I have been living with AS now, well probably my whole life, but have only big diagnosed the past 2 years.

Spinal surgery
I broke my L5 when I was just walking down the street I heard a snap fell to the […]

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Jed Finley commented on the post, What Did I Do Wrong This Time?! 5 days, 8 hours ago

Glad you were able to connect with this article. It is really hard not to play the game. Letting go and doing your best, is a great way to live. And if you are hurting from doing something you love, it shouldn’t stop you from continuing to do it and love it. Thank you for your comment.
Jed Finley (Team Member)