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StacieS commented on the post, Are Cortisone Shots Worth It? 19 hours, 33 minutes ago

I have had cortisone shots in both hip joints at once several times. Also have had one in my shoulder joint. They didn’t hurt while getting them at all and I never had any pain with them except minor soreness at the injection site. I get them when my remicade infusions aren’t enough, mostly because I also have bursitis that acts up from time to…

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Lawrence "Rick" Phillips commented on the post, Realizing AS Changes Everything 21 hours, 37 minutes ago

We did what we tended to do with bad medical news. We went to the car and had a good cry. We did this with RA, open heart surgery and all the rest. We did the same with AS. We had our cry, said we will figure this out and off we went.

I like the pause for a good cry routine. We get the tenderness and we also get the opportunity to get it…

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Jed Finley commented on the post, Food Is My Enemy 1 day, 6 hours ago

My wife offered me some gravel outside of a Ben & Jerry’s 😂 No, it’s not fun at all.
Ive been really good lately, but it’s also been quite depressing. There is just so little I can eat, but it has been worth it in the long run. Thanks for reading and commenting!

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Lisa Marie Basile commented on the post, Realizing AS Changes Everything 1 day, 8 hours ago

This is SO beautiful. Thank you. As a patient with AS (also with a partner like you who is understanding), it’s so refreshing to hear you say things like, “And for Keegan, it meant seeing life in a new way.” That is such a simple and perfect way of putting it. It IS a new life.

I will say, please don’t spend time regretting your past times not…

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Lisa Marie Basile commented on the post, Food Is My Enemy 1 day, 8 hours ago

This is such a good post, especially because of its honesty. For so long, I’d hear of people doing the AI protocols and I’d think, ‘How on earth are they doing it?’ But the truth is, it’s not fun or easy, and I shouldn’t assume it is for anyone — it’s rough, and you just proved that. I will be honest; diet has been the last pillar for me. I s…

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Lisa Marie Basile commented on the post, What Bothers Us The Most About AS? 1 day, 8 hours ago

Thanks for this! In the beginning, the pain was my worse than the fatigue. For some reason, I’ve gotten weirdly “friendly” with my pain. It’s like my twin, always following me around. I can predict it. But the fatigue is so ever-lasting, so hard to ignore or work around, that I think that’s the worst.

I wonder often how our lives have changed…

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Lisa Marie Basile commented on the post, Are Cortisone Shots Worth It? 1 day, 10 hours ago

Thanks for this. I appreciated your detail — and I’m sorry that the injections didn’t really help. That sucks! Here’s to you finding something that provides relief, at least for a little.

I’ve not gotten to the point of needing cortisone just yet, but I know I may in the future, probably sooner rather than later. Not having insurance is also o…

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ARBatteiger commented on the post, Are Cortisone Shots Worth It? 2 days, 6 hours ago

I get the cortisone shots about every 6 months My Dr puts my under general anesthesia for the procedure. I am only under for a few minutes. Normally I get anywhere from 2-4 injections. They work great for me. I get them in my back and SI joints

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Editorial Team posted a page 2 days, 16 hours ago

Jayson Sacco was diagnosed at age 14 with Ankylosing Spondylitis. This was before internet or any of the extensive knowledge or medications available now. Through the years due to AS, he has had multiple Iritis […]