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Hi Cara, I’ve been on it about eight months, I think it’s starting to work but need a little more time. I understand the medication dance can get really tiring. I hope you find relief soon.
Im on a regimen that allows be to be fairly active – even though i hurt all the time. Wondering if humira has worked for any of you? im currently on methotrexate and prednisone prn plus norco, gabapentin, etc etc…
Also. im ready to give up on my teeth….they hurt all the time
Been a bad day, bad week & bad month.
It killed your back? How so? Ive been in discussions with Wal-Mart to make a few things more accessible, so Id love to know your thoughts.
And, I HATE brain fog in those moments. When you need to defend yourself, but you just cant get words or just dont have the energy to fight. Thank you so much for your comment!
Hall of fame comment, Rick!
I’m glad I’m not alone in thinking everyone is watching. Its hard when your disability lacks visibility.
And I think that is a wonderful idea. Because there was this guy who can fit 3 pool balls in his mouth, and now he’s shopping for a baking tin.
I tried the motorized scooter thing at our Wal-Mart. It about killed my back so I won’t be doing that again.
I did get a cussing one time because my husband pulled into handicap parking. I got out and this lady in the car behind us was saying she was going to pull in there. This was before I started using a cane all the time. I was in such a…
hurting, neck is froze up again
Ellie, I hope you are well today and that the Aleve is helping out.
I know that often times it is difficult to get an appropriate diagnosis. In my case the DX seems to bounce around depending on the doctor and their specialty. I have had surgeons who have worked on my back and hip and declared it AS. While I have had doctors who do not…
Hello Denise: I have also had hip replacement, though mine is now seven years old. It is the best decision I made outside of marrying my wife.
I hope you find comfort here in our community.
rick – site moderator.
Mike,welcome to our site. I hope you do as well. We are a caring compassionate community of caring people who suffer with or care for thsoe who suffer with AS. I hope you find that you find comfort here.
I have a disabled license plate which I use occasionally. I always hate doing it, almost like each time I drive I have my own trip on the river denial. I think it is a typical human thing to assume people are looking at us. I mean what would middle school have been without that emotion?
Wow! That’s quite a journey, @ellie. I’m glad to hear you’re on the road to getting help. We’re happy to be here and share our stories and hope you can get some answers soon!
My husband just got done with a double hip replacement! What kind of surgery are you having to get @denise-spencer? I hope that it brings you relief! – Best wishes, Auldyn [Team Member]
Hi @mikew! I’m so sorry to hear this. Feel free to share your story on the Stories page linked below. There are a lot of folks in different places in their AS journey on the site and I hope you can find comfort soon. – All my best, Auldyn [Team Member]