What You Don’t See: Living With an Invisible IllnessLiving with an invisible illness has taught me a couple of things: (1) people make assumptions about my condition based on what their eyes see; and (2) that I need... By Jessica Gama2 min readBookmark for laterReactions 0 reactions Comments9 comments
A Look Back at Seven Years With ASThis past winter marked my seven-year diagnosis anniversary with ankylosing spondylitis. My how time flies! While my official diagnosis came seven years ago, my AS symptoms began long before then... By Jessica Gama3 min readBookmark for laterReactions 0 reactions Comments2 comments
Four Low-Impact Exercises for SpondiesIt’s that time of year again when most of us not only think about making changes to our daily lives, but we also resolve to do so. But adding more... By Jessica Gama3 min readBookmark for laterReactions 0 reactions Comments5 comments
Personal Needs and Self-Care as PracticeI’m still working out the details of what self-care means for me, and if I’m being honest my idea of self-care and my own personal needs are always changing. There... By Jessica Gama3 min readBookmark for laterReactions 0 reactions Comments5 comments
An Unnerving Complication of AxSpa: CostochondritisAxial spondyloarthritis is a systemic disease, so I know it has the potential to affect any organ system (and therefore any area) of the body. But when a new symptom... By Jessica Gama3 min readBookmark for laterReactions 0 reactions Comments14 comments
Self-Care For Spoonies: More Than A BuzzwordThe National Institute on Mental Health says that self-care “means taking the time to do things that help you live well and improve both your physical health and mental health.”... By Jessica Gama2 min readBookmark for laterReactions 0 reactions Comments4 comments
I’m So Over It - Chronic Illness and Healthcare Burnout2021 was fun, tiring, wonderful, complicated, and stressful, among other things. Above all, it was a long, exhausting year full of healthcare visits for me. As a result, I’ve been... By Jessica Gama3 min readBookmark for laterReactions 0 reactions Comments4 comments
The Art of Relinquishing ControlI like the title of this article because it makes the subject sound deep, philosophical, or maybe even a bit spiritual. As if I might pontificate on the practice of... By Jessica Gama3 min readBookmark for laterReactions 0 reactions Comments2 comments
Autumn and the Seasonal Shift of SymptomsFall is by far my favorite time of year, especially when living in a place with prime foliage. The few weeks at the end of September and beginning of October... By Jessica Gama3 min readBookmark for laterReactions 0 reactions Comments4 comments
Hold for Infections: My Recent Experience with Biologics and ImmunosuppressionMy life with biologics stretches back six years now. I was diagnosed nearly 15 years after initial symptoms appeared, and since I had been self-medicating with NSAIDs for years (without... By Jessica Gama2 min readBookmark for laterReactions 0 reactions Comments7 comments
Supporting a Partner with AxSpA Vol. 2 - Advice for OthersThis is volume 2 in a series of articles focusing on supporting loved ones with axial spondyloarthritis. The advice I would give to others with a spouse or family member... By Jessica Gama3 min readBookmark for laterReactions 0 reactions Comments2 comments
The Many Doctors Who Manage My Axial SpondyloarthritisOne question I get often is "who treats axial spondyloarthritis?" Typically, this question arises from individuals with some of the symptoms of AxSpA but no diagnosis, so I figured why... By Jessica Gama2 min readBookmark for laterReactions 0 reactions Comments11 comments
Coming Out at the Doctor's OfficeI have seen countless physicians in four different states in the U.S. and my experience with heteronormativity is generally the same. Often, the idea that a patient may be part... By Jessica Gama2 min readBookmark for laterReactions 0 reactions Comments0 comments
Supporting a Partner with AxSpA, Vol. 1: The Diagnosis ProcessLiving with axial spondyloarthritis is not easy, and I know it would be all that much more difficult without a support system. I also realize that while I experience all... By Jessica Gama4 min readBookmark for laterReactions 0 reactions Comments4 comments
Dealing With a Chronically Ill and Changing BodyWhen we talk about ourselves (and other people), we often reference character qualities as if they’re immutable and innate. We have expectations for ourselves, perhaps shaped from being told countless... By Jessica Gama3 min readBookmark for laterReactions 0 reactions Comments1 comments
Traveling With Axial SpondyloarthritisNow that warmer weather is here, I find myself daydreaming about all the places I hope to visit this summer. I recently made a quick, long-weekend trip out to Utah... By Jessica Gama3 min readBookmark for laterReactions 0 reactions Comments0 comments
How Life Has Changed - A Partner's PerspectiveWe talk so much about how our personal lives have changed with axial spondyloarthritis, but it occurred to me recently that my AS has affected more than just my life... By Jessica Gama3 min readBookmark for laterReactions 0 reactions Comments1 comments
Effects of Heteronormativity in Healthcare on LGBTQ+ PatientsFrom the start, I want to be clear that I do not intend to paint with a broad brush here. There are many wonderful, empathetic practitioners out there in the... By Jessica Gama4 min readBookmark for laterReactions 0 reactions Comments1 comments
Digestive System and Axial SpondyloarthritisSometimes I feel like the number of ways AxSpA can affect my body are endless. It’s extremely discouraging. But as a systemic disease, the truth of the matter is that... By Jessica Gama3 min readBookmark for laterReactions 0 reactions Comments15 comments
Axial Spondyloarthritis With a Side of Peripheral ArthritisA cold front has arrived and my joints are rigid and slow to respond. Not just the joints in my back and hips, but peripheral joints as well. I bundle... By Jessica Gama3 min readBookmark for laterReactions 0 reactions Comments4 comments