I am reading this and I can understand what you are going through and feeling. I think many of us on here can relate to having many around us not understanding how we don't always know how we will feel. This is disease can be unpredictable and different for everyone.
Have you tried showing your friends maybe more what the Axspa is all about? Or maybe some articles? Sometimes it takes time for others to understand and see what it's all about.
Sending you warm hugs,
Nicky (Team Member)