Sex and AS: Position Pain Ratings and Tips for Pain Free PassionNewsflash - people with chronic illnesses and disabilities enjoy sex too! You wouldn’t think it as a lot of the time in society we are kind of desexualised by society... By James Hollens4 min readBookmark for laterReactions 0 reactions Comments3 comments
The Healing Power of SillinessAny parent of a 4-year-old and 2-year old will admit that things tend to get pretty silly in their house. Add in an AxSpa diagnosis, and silliness becomes a core... By Auldyn Matthews3 min readBookmark for laterReactions 0 reactions Comments1 comments
When the Cost of Care Makes Access an IssueWhen I was growing up, my family reserved hospital visits for emergencies that couldn't wait until the doctor's office opened in the morning. During that first year of my diagnosis... By Tomesha Campbell2 min readBookmark for laterReactions 0 reactions Comments4 comments
Dealing With the Lack of Knowledge of AS in HealthcareBefore I was diagnosed with ankylosis spondylitis, I’d never heard of it. I spent a lot of time researching my condition, then explaining to friends and family what AS is... By Joy Tilbrook3 min readBookmark for laterReactions 0 reactions Comments4 comments
My 4 Arthritis Self-Care BasicsSelf-care makes up a substantial portion of our quality of life, but like good food, safe shelter, and a healthy environment it often gets less attention than our social life... By Dawn Gibson2 min readBookmark for laterReactions 0 reactions Comments4 comments
Why I’m Not on a BiologicThere’s a conversation my rheumatologist and I have on replay at every appointment I attend. It starts with my doctor sharing the results of my blood tests and imaging reports... By Anne-Marie Raymond3 min readBookmark for laterReactions 0 reactions Comments5 comments
Reducing Medication Intake Is My Agenda Whilst Living With AxSpaAfter my diagnosis I visited doctors to seek advice, discuss treatment recommendations, and find ways to cope with AxSpa symptoms. From the start, I have always had in mind to... By Julie Vallortigara3 min readBookmark for laterReactions 0 reactions Comments13 comments
My Journey as an Athlete Living With ASI have been an athlete most of my life. I discovered the sport of tennis when I lived in France at the age of 7. The beginning of a beautiful... By Lana Buettner2 min readBookmark for laterReactions 0 reactions Comments5 comments
My Experience Getting Infliximab InfusionsI get inflixmab infusions (under the brand name Inflectra) every four weeks. Inflectra is a biosimilar of Remicade. I get 6 vials of 100mg infused and have been at this... By Anna Samson2 min readBookmark for laterReactions 0 reactions Comments3 comments
Discovering a Different Version of Myself With ASDeveloping AS changed my life in in all kinds of ways. Things I had enjoyed were now off-limits. Plans I’d made were cancelled. People I had felt connected to grew... By Anne-Marie Raymond2 min readBookmark for laterReactions 0 reactions Comments1 comments
Explaining Spondylitis to KidsTwo facts about me: If a kid has any questions, I am going to find the best way to answer them. But, that is not always easy. Axial spondyloarthritis is... By Jed Finley3 min readBookmark for laterReactions 0 reactions Comments3 comments
Three Years Since My AS DiagnosisYou would think getting a diagnosis would have answered all the questions about what was going on in my body. The answers to questions like: What led me to be... By Nicky-Flikas-aks2 min readBookmark for laterReactions 0 reactions Comments3 comments
Changing to a Plant-Based DietNearly two years ago, I decided to try a plant-based diet in hopes that it would reduce inflammation and improve symptoms I experience related to axial spondyloarthritis. Let me preface... By Jamie Shinkewski3 min readBookmark for laterReactions 0 reactions Comments1 comments
Keeping Warm and Cozy With ASThe winter months were always my favorite time of the year as a child, not because I enjoy the cold. I enjoyed the winter because it was almost guaranteed that... By Tomesha Campbell3 min readBookmark for laterReactions 0 reactions Comments2 comments
My 6 Tips For Spondylitis WellnessThe most troublesome spondylitis symptoms line up perfectly with crucial aspects of living life on our own terms. Pain, fatigue, stiffness, and reduced range of motion pose formidable challenges to... By Dawn Gibson2 min readBookmark for laterReactions 0 reactions Comments1 comments
Exploring Different Treatment Options for Ankylosing SpondylitisMaking the decision to switch medications for ankylosing spondylitis can be a daunting and overwhelming process. It's important to understand the reasons behind this switch and the potential benefits it... By Jed Finley3 min readBookmark for laterReactions 0 reactions Comments2 comments
Yes, ChatGPT Can Help You Manage ASChatGPT, a chatbot powered by artificial intelligence (AI), has been making headlines lately. As a faculty member teaching human-computer interaction, a discipline focused on how humans interact with technology, I... By Auldyn Matthews2 min readBookmark for laterReactions 0 reactions Comments1 comments
What I Have Learned From Working With Hundreds of People With AxSpaAs you may or may not know, I am the Co-Founder of Yoga for AS. We are an organization who specialize in teaching people with AxSpa the tools of yoga... By Jamie Boder2 min readBookmark for laterReactions 0 reactions Comments1 comments
Reasons To Date A SpoonieLet’s be honest - dating with a chronic illness is tough. A quick glance at my tragic love life would more than confirm this fact. We are already in a toxic relationship with... By James Hollens3 min readBookmark for laterReactions 0 reactions Comments0 comments
Food is Medicine: What I Eat In A DayI’ve now followed an integrative lifestyle approach to manage my AS for several years. Nutrition, movement, exercise, stress management, mindset, mindfulness and connection (with myself, nature, others) are all essential... By Lana Buettner3 min readBookmark for laterReactions 0 reactions Comments1 comments